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ET management, Is anyone here taking Jakafi or Pegasus?

Blood Cancers & Disorders | Last Active: Feb 5 6:54pm | Replies (6)
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@johngrudnowski

I'm new to ET and been on hydrea for ~3.5 weeks now. limited side effects but also platelets still at 500. I've been reading about the other meds and would REALLY love to hear more stories. I'm planning to speak with my doctor on Feb 8th about this as well and will report back but in the meantime any info would be amazing. It seems to me that Hydrea is tried, true and cheap which makes it easy to recommended.

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Replies to "I'm new to ET and been on hydrea for ~3.5 weeks now. limited side effects but..."
1995victoria | @1995victoria | Feb 5 10:28am

I've been on HU for 3 years, first year platelets up and down, finally settle in after year on HU. Mine started over 1,000, now in 300 range. My Dr said can vary from am to pm, not to get too hung up on numbers as long as it's working.

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