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ET management, Is anyone here taking Jakafi or Pegasus?
Blood Cancers & Disorders | Last Active: Feb 25 11:25am | Replies (8)Comment receiving replies
Just talked with husband's oncologist (other issues) who told me he has very few patients taking anagrelide for ET as it may have serious side effects including arythimia and something about legs. He does offer jakafi which has had considerable acceptance rates. So, I'll stop yapping about my success with Agrylin (original drug) or anagrelide!! Good hearing about all those variations with blood disorders!!
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Hi,
I have had ET for over 17 years now I am 73, and was on Anagrelide for that period of time, I did not have any side effects at all, so that was good for me. New specialist and after Bone Marrow Test, which I had never had before, I am now ET Tripple Negative and he has started me on Hydrae. Currently on 1 tablet every day and 1 each other day. (Basically 1. 1/2 per day.) Platelets not going down still over 850. Next blood test 4 weeks. Hopefully down by then.