I started Afinitor in November 2023 for metastatic NET
I started with
Mouth sores which got better
Rash which was treated with topical and is a lot better
Now!!!
An erratic pulse while on medication gets better off medication
Did an EKG it was ok
Off medication for 6 days now and I get sooo…. Winded my heart pounds when I do anything other than rest
My Oncologist wants me to start again insists it’s not the medication
My Cardiologist doesn’t want me to start again until he sees me in 4 days
(Unfortunately I am on vacation and only have 2 days left) thank goodness
Anyone else had this side effect with Afinitor
I have been on this rollercoaster for 5 years numerous procedures and surgery
However this is the first time I have truly SCARED!!!
Please let me know what your experience was
Thank you. And all my best!