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← Return to AML, age 78, taking Decetabine/ Venetoclax, no transplant
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AML, age 78, taking Decetabine/ Venetoclax, no transplant
Blood Cancers & Disorders | Last Active: Apr 21 12:05pm | Replies (55)Comment receiving replies
Having 2 clean biopsies clear of blasts is a really encouraging for your dad! Hopefully being able to take a break for a month or so will allow your dad’s body recover and see his blood numbers increase. I had a different treatment for my AML. The first month I rebounded quickly. But each subsequent month my body was a little slower to recover after the week of chemo. Once I was finished with treatment regeneration happed fairly quickly. But it worked to kill the cancer cells, which was the goal.
Oh gosh, that’s really discouraging about the Flomax no longer working for your dad. My husband had a similar issue after being on it for a while. His doctor switched him from Flomax to Tamsulosin and Finasteride. That has really helped him sleep through the night! Especially the Tamsulosin. It might be worth mentioning to your dad so he can discuss it with his doctor. Not getting any sleep is awful. Especially with his ongoing chemo treatments…he will naturally be tired! Poor guy!
Wishing your dad all the best! I’d like to follow him along so let me know how he’s doing, ok?
Replies to "Having 2 clean biopsies clear of blasts is a really encouraging for your dad! Hopefully being..."
Hi Lori, I am new here and thankful for all you do. My husband who was initially diagnosed with MDS late last year was on Vidaza which showed no improvement after 5 cycles with 10%+ blasts as shown in his recent bone marrow biopsy. He had been recently switched to the Decitabine/Venetoclax protocol going on his 2nd cycle next week. Although probably too early to say, apart from fatigue he shows no other side effects, maintains good appetite and reasonable sleep time. However he has needed transfusions last week (and had one last month as well) as his blood counts have been seriously low at 0.40 WBC/2.08 RBC/11 Platelets which his doctors warned us would get worse before they get better. It is encouraging to hear IamHisDaughter's Dad responding favorably to the same treatment and wish him recovery. My husband is also diagnosed with mid-stage prostate cancer which he received Leuprolide/Eligard. Although being treated out of the VA Hospital, both his oncologist and hematologist work out of Moffitt Cancer Center in Tampa, FL.
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Getting ready to take him to his third infusion this week. I just wanted to say I appreciate the conversation.
I just lost my Mom a couple of years ago. She was young and it was a long almost 10 years of being a caregiver. Now just a couple of years later we receive this news with my father and it was so unexpected. He has always been healthy and very fit. Not too long ago he competed in bodybuilding contests. Being a care giver is exhausting but I wouldn’t trade it for the world. It’s an honor to be able to care for your parents.
You are so very kind and supportive. I really appreciate you and will continue to pray for you.