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AML, age 78, taking Decetabine/ Venetoclax, no transplant

Blood Cancers & Disorders | Last Active: Jul 2 9:53am | Replies (51)
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@immaninja

Yes Mam, Wednesdays appointment Doctor confirmed last two biopsies showed no leukemia and/no blasts. They are holding off starting second round. His doctor wants his platelets to increase, gain some weight and let his body recovery. Unfortunately, he doesn’t get much sleep due to enlarged prostate. It appears that the Flomax isn’t working for him. He never sleeps more than 3 hours at a time due to getting up and having to empty is bladder. It’s so frustrating. He is so tired and he really could use some solid sleep to allow his body to heal and recover. I believe he did have mutations. I will need to reread those notes in his portal.

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Replies to "Yes Mam, Wednesdays appointment Doctor confirmed last two biopsies showed no leukemia and/no blasts. They are..."
Lori, Volunteer Mentor | @loribmt | Jan 24 8:55pm

Having 2 clean biopsies clear of blasts is a really encouraging for your dad! Hopefully being able to take a break for a month or so will allow your dad’s body recover and see his blood numbers increase. I had a different treatment for my AML. The first month I rebounded quickly. But each subsequent month my body was a little slower to recover after the week of chemo. Once I was finished with treatment regeneration happed fairly quickly. But it worked to kill the cancer cells, which was the goal.

Oh gosh, that’s really discouraging about the Flomax no longer working for your dad. My husband had a similar issue after being on it for a while. His doctor switched him from Flomax to Tamsulosin and Finasteride. That has really helped him sleep through the night! Especially the Tamsulosin. It might be worth mentioning to your dad so he can discuss it with his doctor. Not getting any sleep is awful. Especially with his ongoing chemo treatments…he will naturally be tired! Poor guy!

Wishing your dad all the best! I’d like to follow him along so let me know how he’s doing, ok?

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