← Return to Does anyone else have MGUS?

Discussion

Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

Comment receiving replies
@mikxtr

So had my consultation. I brought in my written timeline. He dismissed it without even looking at it. His statement was the type of mgus you have does not have symptoms so whatever it is, it's not related. That was pretty disappointing. But eventually he started to talk more and we ended with a good conversation and him explaining why he didn't think my various issues were related to mgus. I think he makes sense.

Big issue for me is the increase in both FLCs. Makes the ratio normal because they're both near the top end of the range. He finally noted that if there were deposits they would need to biopsy but at this point there was no indication. That made me feel better because now I know that as long as it's still intermittent, I'm ok.

So all on all, on the long road of wait-and-see. I'm still going to push for labs in another 6 months and then I'll go to every year or 2. Glad I went.

Thanks for listening and for this group.

Jump to this post


Replies to "So had my consultation. I brought in my written timeline. He dismissed it without even looking..."

Yes, push for labs in six months.
Ginger