Hi
I did talk to my oncologist yesterday about this test. He is aware of it. And they are doing it at the hospital. Where I am going to be going for my radiation.
@sue417 - I am SOOO pleased for you! This is the test you would want to help you assess your risk with and without radiation. Did you tell the doctor you want the test?
Sue, I am very happy things are moving in the right direction, although certainly not as fast as you would want! Stay strong; we are cheering for you!!!
@sue417 - I am SOOO pleased for you! This is the test you would want to help you assess your risk with and without radiation. Did you tell the doctor you want the test?
Sue, I am very happy things are moving in the right direction, although certainly not as fast as you would want! Stay strong; we are cheering for you!!!
Hi
Honestly, it could be millimeter. I don't know my head swims when I talk to these people. I saw the oncologist yesterday and he really couldn't give me any more information. I have no idea if I'm estrogen. Positive or negative, he said that's a question for the London radiologist. So now I am waiting for that phone call. Then I will have to go down to London which is an hour away for a consult.
@sue417 - I am sorry you felt this way, but you are NOT alone. Most of us can truly relate! Can you have someone with you next time so he/she can take notes for you? I, and many others find that it helps a great deal. It also helps to review the notes with that person so you can remember the information and share your thoughts with someone who can support you. Can you ask someone to come with you when you go to London?
For me, it was my husband. He came to every appointment and took many notes. On my first appointment with the surgeon, my daughter, who lives in a different state, wanted to hear what the doctor said, so I asked the surgeon if I could use my cell (on speakerphone) during the meeting so my daughter could listen in. The doctor was happy to do so.
You didn't mention if you asked for and received any documents, such as pathology results, for either the biopsy or the surgery. Did you?
Had Dcis stage 2 with 1 lymph and 1 had micro. Took 4 the other 2 were no cancer found I also did lumpectomy with good margins. And radiation for 6 weeks and taking anastolzole for 5 to 7 years. I’m 59.
Had a small DCIS, stage 3, lumpectomy, clear margins, lymph node biopsy clean, radiation for 4 weeks, on anastomose. Hoping for the best. Just had 6 mo diagnostic mammograms done. Clean.
@sue417 - I am sorry you felt this way, but you are NOT alone. Most of us can truly relate! Can you have someone with you next time so he/she can take notes for you? I, and many others find that it helps a great deal. It also helps to review the notes with that person so you can remember the information and share your thoughts with someone who can support you. Can you ask someone to come with you when you go to London?
For me, it was my husband. He came to every appointment and took many notes. On my first appointment with the surgeon, my daughter, who lives in a different state, wanted to hear what the doctor said, so I asked the surgeon if I could use my cell (on speakerphone) during the meeting so my daughter could listen in. The doctor was happy to do so.
You didn't mention if you asked for and received any documents, such as pathology results, for either the biopsy or the surgery. Did you?
Had a small DCIS, stage 3, lumpectomy, clear margins, lymph node biopsy clean, radiation for 4 weeks, on anastomose. Hoping for the best. Just had 6 mo diagnostic mammograms done. Clean.
@chaya242424 - Congratulations! These are all GREAT steps toward complete recovery. So proud of your successes!
I say so, knowing that perhaps you feel anxious and unsure about the future. If so, you are NOT alone. Anxiety and fear of the future (in terms of cancer) are emotions shared by most of us affected by breast or any other type of cancer.
If you'd like to talk about your feelings, remember that we can help. This is a great community, very supportive and caring.
@sue417 - Dear Sue, this must be so very upsetting! There is the lengthy wait, and then you don't have any reports! I am so sorry you are going through such issues! Yes, you should ask each doctor, but also your oncology coordinator, and the hospital records department.
Can you use the Patient Portal?
Sue, I am not familiar with the Health System in Canada. Can you tell me if your oncology coordinator is with you at each appointment? Does she take notes for you? Can she? Does she go over the main points that were addressed during each appointment?
In the US, we have Nurse Navigators; however, their job is to help patients "navigate" (understand and use) the health system (as a whole) through each phase of their care. This is relative to that particular hospital system/medical center.
However, while the Nurse Navigator will help you through the various phases of your care, they don't accompany you to any appointments.
I truly appreciated this service. Initially, I had no idea what to do, who to see, or where to go! It was very calming and absolutely helpful.
Does your oncology coordinator do any of above, aside from coming with you at each medical appointment?
@sue417 - Sorry to hear that, Sue! However, make this waiting time work for you. Call the Radiology Oncology department in London (or other place) and get the information the DCISintRT people need to send the information to the doctor there. Otherwise, there will be additional waiting time!
If you prefer, you can give me the information I asked a few days ago; so I can help you.
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@sue417 - I am SOOO pleased for you! This is the test you would want to help you assess your risk with and without radiation. Did you tell the doctor you want the test?
Sue, I am very happy things are moving in the right direction, although certainly not as fast as you would want! Stay strong; we are cheering for you!!!
HUGS,
D
Hi
I will when I get to london for my consultation
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2 Reactions@sue417 - I am sorry you felt this way, but you are NOT alone. Most of us can truly relate! Can you have someone with you next time so he/she can take notes for you? I, and many others find that it helps a great deal. It also helps to review the notes with that person so you can remember the information and share your thoughts with someone who can support you. Can you ask someone to come with you when you go to London?
For me, it was my husband. He came to every appointment and took many notes. On my first appointment with the surgeon, my daughter, who lives in a different state, wanted to hear what the doctor said, so I asked the surgeon if I could use my cell (on speakerphone) during the meeting so my daughter could listen in. The doctor was happy to do so.
You didn't mention if you asked for and received any documents, such as pathology results, for either the biopsy or the surgery. Did you?
Stay strong, Sue, and know we are by your side!
HUGS,
D
@sue417 - Great! Do you have a date for that consultation?
HUGS,
D.
Had a small DCIS, stage 3, lumpectomy, clear margins, lymph node biopsy clean, radiation for 4 weeks, on anastomose. Hoping for the best. Just had 6 mo diagnostic mammograms done. Clean.
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3 ReactionsHi
No Its another waiting game
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2 ReactionsHi
I have the oncology coordinator with me. I have asked 2 drs now for my reports I have nothing. I see my gp next week so u will ask him.
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2 Reactions@chaya242424 - Congratulations! These are all GREAT steps toward complete recovery. So proud of your successes!
I say so, knowing that perhaps you feel anxious and unsure about the future. If so, you are NOT alone. Anxiety and fear of the future (in terms of cancer) are emotions shared by most of us affected by breast or any other type of cancer.
If you'd like to talk about your feelings, remember that we can help. This is a great community, very supportive and caring.
Best of health to you, dear @chaya242424!!!
HUGS!
D
@sue417 - Dear Sue, this must be so very upsetting! There is the lengthy wait, and then you don't have any reports! I am so sorry you are going through such issues! Yes, you should ask each doctor, but also your oncology coordinator, and the hospital records department.
Can you use the Patient Portal?
Sue, I am not familiar with the Health System in Canada. Can you tell me if your oncology coordinator is with you at each appointment? Does she take notes for you? Can she? Does she go over the main points that were addressed during each appointment?
In the US, we have Nurse Navigators; however, their job is to help patients "navigate" (understand and use) the health system (as a whole) through each phase of their care. This is relative to that particular hospital system/medical center.
However, while the Nurse Navigator will help you through the various phases of your care, they don't accompany you to any appointments.
I truly appreciated this service. Initially, I had no idea what to do, who to see, or where to go! It was very calming and absolutely helpful.
Does your oncology coordinator do any of above, aside from coming with you at each medical appointment?
HUGS!
D.
@sue417 - Sorry to hear that, Sue! However, make this waiting time work for you. Call the Radiology Oncology department in London (or other place) and get the information the DCISintRT people need to send the information to the doctor there. Otherwise, there will be additional waiting time!
If you prefer, you can give me the information I asked a few days ago; so I can help you.
HUGS!
D.