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Small Fiber Neuropathy

Neuropathy | Last Active: 6 days ago | Replies (95)
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@blaircrossan

I just found this site and I am so happy I did. I was exposed to to HSV 2 and I had typical flu symptoms within days. My neuropathy began within weeks and has now spread to my entire body. This has been going on for 4 years. I have had this conversation with over 50 medical professionals and everyone is confused. Most don't believe me and cast me aside, while others just move on. I truly believe most idopathic neuropathy is driven by viruses. The frustrating part is that there isn't much being done to address it.

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Replies to "I just found this site and I am so happy I did. I was exposed to..."
Chris Trout, Volunteer Mentor | @artscaping | Jan 24 2:43am

Good evening @blaircrossan, welcome to Connect, a very active Neuropathy Support Group. If I read your introduction correctly, you are saying that viruses from a previous medical condition caused your idiopathic neuropathy. When were you diagnosed with neuropathy? I am so sorry that you have not received an appropriate response from medical professionals. Are you taking any pain medication? Many of the Connect members have found that neuropathy symptoms first appear in the hands and feet.

Perhaps it would be best to start your discussions with other members after you have had a chance to gather information contained in the following sites.
https://www.foundationforpn.org/. The Foundation for Peripheral Neuropathy
https://neuropathycommons.org/. Neuropathy Commons

As a mentor, my experience comes from 11 years of SFN (small fiber neuropathy). Did anyone mention SFN to you? Did you have a skin biopsy to validate SFN?

I will look forward to your next post.
May your struggles and sorrows be eased
Chris

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