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Treatment Options for Paralyzed Diaphragm

Posted by nla4625 @nla4625, Nov 6, 2021

This is an excellent video that discusses various treatment options for paralyzed treatments.


https://www.youtube.com/watch?v=uLm9pBsQgOI.

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ialogic | @ialogic | Mar 5, 2023

I’d ask about ozempic or try noom for weight loss and PT for myofascial release. Don’t get on oxygen, you need NIV.

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nla4625 | @nla4625 | Mar 18, 2023

I recently read about a couple of possible new treatments for paralyzed diaphragms on the facebook page for people with paralyzed diaphragms. Reference links are included.

One -- an implantable ventilator -- is being developed at MIT. https://news.mit.edu/2022/diaphragm-implantable-ventilator-1212?fbclid=IwAR3taeEzL0bTVN1AJRLy9L_xaH7Yf6QRHUjC7qcMTP9II8VIhVt7tuuumc0

Two -- the paralyzed diaphragm muscle is being replaced by new muscle. This is apparently being done at The Reconstruction Center in New Jersey where Dr. Kaufman does nerve grafts onto the phrenic nerve. I haven't heard of anyone who has had this done so would advise really checking out their results rates before pursuing it. . https://www.advancedreconstruction.com/blog/faqs-about-diaphragm-paralysis?

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lululinden | @lululinden | Jan 23 10:23am
In reply to @jenniferhunter "@nla4625 Thanks for posting the video with Dr. Kauffman and I look forward to watching it..." + (show)
@jenniferhunter

@nla4625 Thanks for posting the video with Dr. Kauffman and I look forward to watching it as he discusses his nerve grafting for the phrenic nerve for other doctors. I learned about him here on Connect when other patients posted his name, and I have relayed that information to other patients from time to time who are seeking help in this area. I have learned a lot by watching surgical conference videos and it is very valuable information. I'm glad you shared this!

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I'm new to this group, & wondering if anyone in MN does this phernic nerve reconstruction surgery,
and whether anyone from MN has travelled to New Jersey to have surgery done by Dr. Kauffman, & how that went.

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1 reply
Mentor
Jennifer, Volunteer Mentor | @jenniferhunter | Jan 24 9:52pm
In reply to @lululinden "I'm new to this group, & wondering if anyone in MN does this phernic nerve reconstruction..." + (show)
@lululinden

I'm new to this group, & wondering if anyone in MN does this phernic nerve reconstruction surgery,
and whether anyone from MN has travelled to New Jersey to have surgery done by Dr. Kauffman, & how that went.

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@lululinden I really don't know as I have heard this information from other patients on Connect. You can always search online and on Google Scholar for any medical literature which would list authors.

Jennifer

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nla4625 | @nla4625 | Mar 18 8:18am
In reply to @nla4625 "P.S. Who diagnosed your paralyzed diaphragm? Did you have a SNIFF test, which is the definitive..." + (show)
@nla4625

P.S. Who diagnosed your paralyzed diaphragm? Did you have a SNIFF test, which is the definitive test that determines if the diaphragm is paralyzed. The doctor who ordered and evaluated the SNIFF test should be able to help you find a qualified thoracic surgeon too.

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The latest technology for determining a paralyzed diaphragm is a SNIFF test using ultrasound. This replaces the fluroscope SNIFF test.

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