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← Return to Newly diagnosed with HOCM
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I was on that Lopressor/Metoprole for 4 months. It bottomed out my blood pressure so much I thought it was trying to kill me, they had me taking more of the medidren ( spelling, blood pressure upper is what I call it) to raise it. I felt a little better when they took me off that. But it was after the ablation.
Biotene is the name of that mouth rinse they also have lozenges for on the go.
I have talked with my cardiologist’s nurse this morning. Since Camzyos is not working for me, they are more than likely going to refer me to a Clinic that does the Myectomy procedure. That’s a scary thought, but my first grand baby is about to make his appearance, @ the end of Feb.I sure want to be around to play with him.
I pray that they find answers for your mom. Make sure to take care of yourself.
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Thanks for letting me know about Biotin for my Mom's dry mouth.
(BTW. I sat in on my Mom's appointment yesterday, and it turns out that she has HOCM (not HCM). A few weeks ago I didn't know that there was a difference. I was just trying to remember how to say Hyper Trophic Cardiomyopathy.)
Yesterday I asked my Mom's doctor about 'medical procedures' to resolve her condition. I thought that the procedures might be longer term solutions and that she wouldn't have to take Camzyos for the rest of her life. The doctor told me that in my Mom's case:
- she did react very well to Camzyos
- in fact, the latest Echocardiogram showed that her LVEF was now Normal, and that she no longer had an LVOT gradient (these are both excellent results, especially since she hasn't been taking Camzyos since the doctors stopped it when she was first hospitalized in late November)
- so, the 'procedures' are not an option for my Mom because she isn't elibible
All this to say... that it 'might' be a good thing that you are eligible for a 'procedure', because hopefully it might be the fastest way to relieve your severe symptoms, and that might hopefully continue over a longer term. Just try make sure it is an excellent clinic with an excellent track record for your type of surgery.
I wish you the best of luck for your return to good health!