← Return to Diagnosed with Calciphylaxis

Discussion

Diagnosed with Calciphylaxis

Kidney & Bladder | Last Active: Jan 23 10:09am | Replies (5)
Comment receiving replies
@suzanne0622

I am trying to help a friend who was dx’d with calciphylaxis in Dec 2023 here in NC. Our regional hospital does not seem to have much expertise with this disease. I am wondering if you have found support at Mayo and with Mayo Connect.

Jump to this post

Replies to "I am trying to help a friend who was dx’d with calciphylaxis in Dec 2023 here..."
Lori, Volunteer Mentor | @loribmt | Jan 23 9:22am

Welcome to Connect, @suzanne0622 Your friend is so lucky to have you looking out for them! Coming to Connect is a great place to get feedback from others who have the same diagnosis.
While you’re waiting for member’s to reply, I do have a link for your friend if they are interested in requesting an appointment at Mayo Clinic.
http://mayocl.in/1mtmR63
That link will take them to the main page. Follow the prompts for New Patient and then select a Mayo Campus. There is one in Jacksonville, FL which would probably be the nearest for your friend in NC.

Since Calciphylaxis is a fairly rare diagnosis it could be advantageous for your friend to seek care at a larger medical facility, or a teaching/research clinic such as Mayo.

Is your friend undergoing any type of treatment?

VIEW AND REPLY