Hello everyone! I would like to start by saying, it is nice to find a place to ask questions about medical diagnosed.
My husband was diagnosed with Calciphylaxis in July, 2018. We made the trip from our home in Ohio to Florida, to the Mayo Clinic for an expert diagnosis. It was confirmed that he does have Calciphylaxis. I have researched this (not forgiving) disease since July. I have learned so much about it from many different studies and articles.
My husband and I are wondering if anyone else on here has or knows someone that has Calciphylaxis?
Thank you in advance for any information.