Hello @gpo and welcome to the Parkinson's (PD) support group on Mayo Connect. I'm sure you must be frustrated at the inability of your medical team to come up with some answers to help with the symptoms you are experiencing.

You mention, difficulty swallowing." What type of difficulty are you experiencing? Do you choke when you swallow or does food get stuck? Often, speech therapists can offer suggestions and exercises to help with swallowing problems. Speech therapists are really unsung heroes for individuals with neurological issues. Have you been referred for speech therapy?

Have any meds or physical therapy been offered to you for the other movement disorder symptoms?

I'm really sorry to hear all this is happening to you. I obviously know how much it can suck. I would recommend that Dr Elizabeth Peckham at Central Texas Neurology. They are in Round Rock and they went through every single document, after visit summary, MRI's, CT Scans, bone scans, and every other thing we could fund in me. I have over 140 confirmed and proven diagnosis. Since going to Dr Peckham, I know I really do NOT have all of those diagnosis. It's the PAF, causing pieces of my body to turn off. As the Alpha Synuclein Proteins build up in the nerve fibers or in my brain, new issues arise. Such as my digestive tract is completely paralyzed with the exception of the in door and the out door. So now I live with a feeding tube. If I just eat, due to my epiglottitis being paralyzed, whenever I eat or drink a portion goes directly into my right lung. When I had bladder cancer, the treatment was BCG Therapy. That's injecting bovine tuberculosis into the tumors every week for several months. I was the lucky 1 in 7 million that it jumped the species barrier and I got human tuberculosis. Which destroyed my right lung so bad that they had to remove a large portion of it. Now it's there only as a catch bucket in the event I asperate. Other than that, my right lung does not function. So I've been through years of chasing the cause of all the torture I live with and at least Dr Peckham gave me some understanding. So before the expense of all that travel, I'd try Dr Peckham first. Remember it was the Mayo Clinic that narrowed the search for a diagnosis, Stanford was an outright waste of money, northern Texas facilities were worthless. They have me a diagnosis of fibromyalgia, the go to I HAVE NO IDEA DIAGNOSIS for all doctors facing a challenge. I LOVE finding the doctors that love the challenge of figuring me out. Most do not want the challenge. But Central Texas Neurology wants the challenge! I wish you well and if you ever want to chat, just hit me up.