I am so sorry you are going through this. I know you are suffering and wish there were better answers. I was diagnosed with "SFN likely underpinning autonomic dysfunction, and diffuse muscle twitching and weakness" at Temple BSW. I have no more answers than that. I experienced the same response from UT Southwestern when I was referred to their neuromuscular clinic. I started to have difficulty swallowing in September and had a swallow study on the 30th. It sounds like your PCM is very helpful. Do you mind sharing? I just fired my 3rd one for the year when she said all my symptoms were "somatic, BH health in nature, with strong psychological overlay" despite the results from my neurologist. I am looking at trying to go to Stanford or Mayo, but I need a referral and a new PCM.