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@mesty

Hi,

I am very similar to you. Diagnosed in 2023 and suspecting I have a sensitivity to gluten. U.S neurologists don’t have any knowledge of gluten ataxia research. I am gluten free now since November. I am looking to go anywhere for a tg6 test. I am not celiac, have tested negative for other gluten markers. But have a strong feeling due to other symptoms. Did you have any luck with finding a way to get the tg6 test. I am a Canadian in North Carolina.

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Replies to "Hi, I am very similar to you. Diagnosed in 2023 and suspecting I have a sensitivity..."

Hey there,
I completely forgot about posting here until you replied. I too am gluten free since Nov. No, I never did find a lab in the US that does the TG6 test, I don't think there are any. I connected with an ataxia clinic in the UK who tried to find a lab here that does it but they could not, and they can't work with an American or anyone outside the UK national health system. It turns out that the test is even quite specialized in the UK with only two labs that do it, both at ataxia clinics. I only wanted to take the test to find out my TG6 levels and then compare after a year GF, but it (testing) wasn't mandatory for me to change my diet. How are you doing with it? It seems everyone freaks out about how hard going gluten free is, but after a few months I think it's pretty easy. I stay away from foods advertised as Gluten Free as they tend to have other ingredients that spike blood sugar levels. I just fill my diet with foods that are naturally gluten free. It took a little getting used to but wasn't crazy hard or anything. I live in Detroit MI on the Canadian border, have lots of good friends across the river and go there often:)