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Newly diagnosed with HOCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 24 10:20am | Replies (10)
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@soonerfan

My ablation, was not for the HCM. It was for my rapid heart rate. I would be @120+ resting heart rate.
The only meds I am taking are the camzyos and medidrine ( for the hypotension) Iron, and Pepcid. I also
Have the dry mouth. There is a mouth rinse that works pretty well.

I’m not sure if the hypotension is related to the HCM either. Mine drops pretty low @ times.
I hope you figure out what’s making your mom’s issues.
My mom has HCM also, she does not have the obstructive kind. She gets out of breath easily.

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Replies to "My ablation, was not for the HCM. It was for my rapid heart rate. I would..."
dave023 | @dave023 | Jan 23 8:07am

Thanks for your reply. @soonerfan

In your first posting, you mentioned your dizziness. For my Mom, Camzyos definitely did cause some dizziness. Her dizziness and postural hypotension became quite severe when her body was weakened with Covid. She has been off Camzyos since her hospitalisation with Covid in November -- the doctors took her off Camzyos because they didn't have any knowledge or experience with it (in Canada). Her dizziness has not been an issue for the past few weeks, even though she is taking Metoprolol for high blood pressure (i.e. it can cause "dizziness, faintness, or lightheadedness when getting up suddenly from a lying or sitting position").

Would it be possible to tell me the name of the mouth rinse that you use? My Mom's mouth and tongue get so dry that it's difficult for her to speak properly.

I really hope that your doctors will be able to find a way to get you back to your full health.

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