Connect
← Return to CML Sprycel side effects
Discussion
Blood Cancers & Disorders | Last Active: Jan 22 2:25pm | Replies (7)
Comment receiving replies
hello,
i’ve been on Sprycel for 3 months 40 mg/day. i’ve had a small swelling of the upper eyelids but it’s not serious. I’ve noticed hair thinning. But nothing else so far. I was on Glevac and suffered from terrible edema so the swollen eyelids started when i was on Glevac, So can’t be sure if the swollen eyelid started. I hope it all works out for you and I’ll pray for you
Replies to "hello, i’ve been on Sprycel for 3 months 40 mg/day. i’ve had a small swelling of..."
Connect
Hi: I was on Gleevec for 18 years, and I lived with the real bad oribital edema of my eyelids. My whole face looked swollen. Everything else was manageable, therefore, I stayed on it without missing one dose. I am so glad I stayed on it, and I did not care what I looked like. I started on the Gleevec through the clinical trial back in 2000, and by 2002 my pcr was 0.000. I stayed on until Feb of 2018, and then my doctor told me to stop all treatment with constant monitoring to see if I could still maintain my response. Next month will be 6 years that I have been TFR, and I still pray everytime I have to get my test. I get tested in Feb to see if I got to the 6 year mark. I was told if I have to go back on a TKI that it would not be Sprycel due to it causing pulmonary edema amongst other parts of the body. I would have to start Tasigna.