My husband died two years ago from GBM. He was 76. His tumors were not removed by the doctor. We were told it was pointless because they just grow back and usually very quickly. After he healed up some from the brain surgery we did the chemo and radiation. He was scheduled for six weeks of radiation. After about seven treatments he was really going down hill since the radiation literally kills the brain. He got zero benefit from the radiation. We also knew before he started chemo that it might not do much because his tumors didn’t have the “good” receptors. We thought the radiation though would contain the tumors. The side effect of course is that you are killing the brain itself which isn’t good.

My husband passed away three months after he was diagnosed. I am sure he had it for a while before the diagnosis. He had been having many issues but we didn’t know why. He was bedridden the last six weeks of his life. From the time he was diagnosed until he died his quality of life was almost nil. We were in hospitals or rehab most of that time. He finally came home for hospice the last 11 days. I hate to say all of this because I know no one wants to hear it. But if we had it to do over again I would have just taken him home and cared for him the best I could and sat with him each day and just talk about the good 25 years we had together. It has been 2 years and I still miss him dearly. I am so sorry for anyone who goes through this.