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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@michaelah

I had similar experience. I have IgM MGUS, anti-MAG and WM but after almost two years of the peripheral neuropathy I quickly got numbness in my face. I told my neurologist, and he immediately ordered a brain MRI (small chance but my WM has possibility of Bing-Neel CNS involvement). Concerning but it was symmetrical, so after a clean scan it came down to just more neuropathy that is atypical. So, we can't just rely on what is typical.

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Replies to "I had similar experience. I have IgM MGUS, anti-MAG and WM but after almost two years..."

Yah, it's all so challenging. I have IGG so they dismissed it outright.