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My husband has REM sleep behavior disorder (RBD)

Sleep Health | Last Active: 1 day ago | Replies (73)

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@divine01

Hello there, My husband started having the REM sleep disorder right after we were married. I believe he was about 45 to 50 at the time. He used to punch me and kick me in the bed. He also would get up out of bed and fall out of bed too all in his sleep. I urged him to go to his doctor here at the Mayo clinic and after a sleep study they diagnosed him with the REM sleep disorder. There is a medicine for it but its addictive and it works somewhat but not the best.I had to leave the bedroom which he did not like and to this day is not happy about.He is 65 now and I will be 69 in a few months. He is now shuffling along and he falls backward easily. He has tremors in his hand and feet. He literally has been in the bed for 5 years and has a poor outlook on life. He said his doctor told him he was fine. He did not have parkinsons. I hate tosay it but I know he does. I have to do everything for him. I mean everything. He no longer can take out the garbage. He cannot help me with anything around the house and the only enjoyment he gets is that his little pomeranian adores him and ssleeps with him. Do I call his doctor??? What do I do??? I keep praying about it!

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Replies to "Hello there, My husband started having the REM sleep disorder right after we were married. I..."

Divine01,
I know it has been quite some time since you posted but I was very curious as to how your husband is doing now. Was he finally able to get help? My husband was told yesterday that he has RBD, which I have known for 1.5 years. His loser of a doctor said he had restless legs. My husband's illness has went from 10 mph to 60 mph after a serious fall over a year ago. I am so lost. We just started a new medication and I am hoping that this will help. Hope your husband is doing well. Thanks for sharing your story.