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← Return to CML Sprycel side effects
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Blood Cancers & Disorders | Last Active: Apr 19 7:57am | Replies (16)
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Hi @living, oh gosh. I'm sorry to hear of this development of perceptual cellulitis and that an effective treatment may be the cause. I'm tagging fellow CML members like @dmmurph @bobmon @ortina2023 @quita123 @pam62 @suzie71 @ericloomis @kimmy5 @talmadge81, who have experience with Sprycel (dasatinib) and who may have tips to share.
@living are you still on Sprycel or have you discontinued its use to see if it is the cause of the issue?
Replies to "Hi @living, oh gosh. I'm sorry to hear of this development of perceptual cellulitis and that..."
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Hello
I’m still on Sprycel. My oncologist didn’t see a benefit in reducing my dosage, stay on 50mg or stop. I decided to cut my dosage in half about a month ago. Some of my side effects have improved but the edema is still persistent. Swelling in my calves, abdomen, face, and eyelids. I recently had a visit with primary care and started on a dietetic temporarily to help with fluid retention and see if it would help with my blood pressure, I have some afib and misc heart issues also.
So far edema has improved in all areas, blood pressure are closer to normal, and finally able to shed some water weight.
Planning to continue with the diuretic and half dosage of Sprycel until my next labs.
I agree with others on continuing treatments while managing side effects. It is also important to do your homework, research your own health issues, and be persistent with asking questions. Being your own advocate is the best way to find solutions that fit you best.
Best wishes to everyone struggling and fighting.