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Newly diagnosed with HOCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 24 10:20am | Replies (10)

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@karukgirl

Hello @soonerfan, and Welcome to Mayo Connect.
Gosh, reading your post made me feel so bad for you. How terrible to be so dizzy you need a walker! I would feel sorry for myself too. But I am glad to hear you have such a great support person in your husband. That is a blessing for sure.
Does your cardiologist know about all these symptoms? No two people are alike, and that means everyone can have different experiences on the same drug. There have been some members on here Connect that did not respond favorably to Camzyos and had to go off.
I would 100% be sure to get in touch with your cardiologist.
Are they experienced with HOCM and Camzyos?
Have you thought of a second opinion?
You need to be your own best advocate and it may take reaching out somewhere else just to be sure you are in the right place with the right medical person.
I'm glad you came to Mayo Connect. I hope you find some answers that help you.

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Replies to "Hello @soonerfan, and Welcome to Mayo Connect. Gosh, reading your post made me feel so bad..."

Thank you, yes my husband is a blessing, I feel so bad for him taking care of me. I feel so needy ( which is hard for me, I’ve always been so independent) He watches me like a hawk.
My cardiologist does know about all my symptoms I am waiting on a return call from them. @ this moment I am trying to recover from C-Diff. Which I think I got from the antibiotics I was given for the UTI-sepsis I had @ the end of December. My boss says I can’t catch a break! I’m starting to agree with her.🤨!
Yes I’m am searching for answers/or anyone who has these type symptoms. To know what they have done or doing.
Thank you for the reply. Have a wonderful week.