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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (779)
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@dave023

Hello All,

My mother is 83 and has had undiagnosed HCM for her entire life (as I'm sure is the case for most people with HCM). About 10 years ago she started showing symptoms of being short of breath and had decreased energy. These symptoms continued to become more severe. It wasn't until about 3 years ago that a doctor took her seriously enough to do in-depth testing and she was finally able to receive the diagnosis of HCM.

I have joined this forum because my mother was recently hospitalised, and was very close to death due to undiagnoised Atrial Fibrillation (AFIB). I could go into all of the details of her total of about 30 days in and out of the hospital since the last week of November, but she is now home and doing 'OK'.

For my questions, I will post them each separately to make is easier to follow the forum comment threads for each topic.

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Replies to "Hello All, My mother is 83 and has had undiagnosed HCM for her entire life (as..."
Debra, Volunteer Mentor | @karukgirl | Jan 21 10:25am

Hello @dave023, and Welcome to Mayo Connect. I'm glad you are here and that you are looking for other people with HOCM/HCM because your mother has been diagnosed with it.
I'm sorry that your mother is having such a terrible time. It must have been frightening for you both to go through that. Afib is nothing to fool around with, and needs medical attention.
I believe it is true in a lot of cases that people with HCM are not diagnosed right away. That was true in my case and I know of others as well. The symptoms are so much like many other heart conditions and this is a sneaky disease. Have you done much reading on here yet? There are folks with PVCs and Afib who have HCM as well, so hopefully a member will jump in with their experience.
Do you know what the plan is for your mom? Is her cardiologist experienced in the treatment of HCM? Are they thinking about a defibrillator for her?

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