Has anyone experienced red rash on face after starting Evenity?

Posted by lab54 @lab54, Aug 19, 2023

I just started Evenity 4 weeks ago. On week three, I noticed red breakouts or rash on my face. My face never breaks out. It’s always been free from acne or rashes. I’m not saying it’s the Evenity but it’s the only new drug I’ve started. Has anyone ever had any rash or noticeable changes on your face with Evenity or other Osteoporosis medications? Please reach out too me if you have. It could be totally unrelated. Yesterday was my second round of Evenity & except for sore arms & a rash on my face I’m doing okay so far. Thanks for letting me vent my concerns.

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@gently

Rash is signaled in the clinical trials as an allergic reaction to the medication. It seems to be an indication that you shouldn't take the medication, but so many patients experience it initally and not in later injections.

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I did experience it when I got my second set of shots of Evenity. Had to cancel my 2 other month shots because I was on antibiotics & got Covid. So I’m 2 months behind. Maybe this is a sign I should stop the injections. Told my doctor & she told me it wasn’t a deal breaker so continue with the Evenity.

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It might be flushing. I that a side effect of the drug?

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@mannism

It might be flushing. I that a side effect of the drug?

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It wasn’t flushing. I had to go to my Dermatologist & was put on low dose Doxycycline for 1 month & now I’m on a topical cream called Soolantra. He diagnosed it as Roscea. It comes in many different forms. . Flushing, rashes, & pimples. I had the bad rash. Didn’t even recognize myself. Even at my age, my skin is always flawless minus a few lines & wrinkles. But because you can’t get your shots while on antibiotics & Covid I missed a couple of months. Thanks for your info. It’s greatly appreciated.

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Yes, I developed a rash, blisters on my lips, severe flushing, redness and burning on face after both my first and second Evenity infusions. I have been treated for rosacea in the past but no problems the past 20 years.

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I developed an eczema like rash on my scalp and behind my ears. It went away after stopping Evenity.
I had other side effects of brain fog and fatigue so I quit after 8 monthly injections. Followed up with Reclast about a year & half ago.

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@lab54

I did experience it when I got my second set of shots of Evenity. Had to cancel my 2 other month shots because I was on antibiotics & got Covid. So I’m 2 months behind. Maybe this is a sign I should stop the injections. Told my doctor & she told me it wasn’t a deal breaker so continue with the Evenity.

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Good to hear because my doctor told me I needed to take the full 12 month shots of Evenity.

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While taking Tymlos, I too had a red “rash” that my PCP, via a dermatologist, diagnosed as rosacea. My cheeks and chin were hot, red and felt like they were on fire for about two weeks. The rash disappeared and has not returned (knock wood) since discontinuing Tymlos.

I had so many issues with Tymlos and ended up going to a pain med doc who did pinpoint steroid injections. My guess was that although it is a possibility that Tymlos caused the rash, I can’t rule out that the pain injections were really the culprit. I am currently on Evenity and have taken 15/16 out of 23/24 doses. Best to you all!

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@ddal23

I had no side effects after my first injection but the day after my second injection, my back, butt and stomach was covered with an itchy rash and bruising. Endo said it couldn't be the Evinity. Went to dermatologist she didn't know what caused it either. Gave me a topical steroid to stop itching. I take no other medication and don't have any allergies to anything. It's been 2 weeks and the rash & bruising continues.

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Wow! I just saw this. I started Evenity 4 months ago today. About 3 months ago or so I broke out in a very itchy rash on my scalp, ears, neck, shoulders and back. My dermatologist and I assumed I was having another (but bad) skin Lupus flair. However, medication and time hadn’t helped it. Bloodwork showed a low eGFR level leaving the dermatologist thinking rash due to kidney disease. Waiting to see kidney doctor. BUT NOW wondering if this (rash/itch) is all due to Evenity. IDEAS? COMMENTS?

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@momsters

Wow! I just saw this. I started Evenity 4 months ago today. About 3 months ago or so I broke out in a very itchy rash on my scalp, ears, neck, shoulders and back. My dermatologist and I assumed I was having another (but bad) skin Lupus flair. However, medication and time hadn’t helped it. Bloodwork showed a low eGFR level leaving the dermatologist thinking rash due to kidney disease. Waiting to see kidney doctor. BUT NOW wondering if this (rash/itch) is all due to Evenity. IDEAS? COMMENTS?

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I did as well have an itchy rash on my scalp, neck and behind my ears. Cleared up after stopping Evenity after 8 months. Had other side effects that went away: brain fog, constant hacking cough, achy joints, trouble sleeping .

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Thank you for replying. Before stopping Evenity did you see a dermatologist thinking it may be something else? Or did you make the connect to Evenity right away?

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