Good question, @lizpower. I moved your question to this discussion so you can connect with others looking for a protocol that works for them. There remains much to be studied regarding effective treatment of long COVID.
I think the overarching messages are:
a) treatment depends on your symptoms and should be tailored for you
b) recovery takes time, can involve set backs and requires patience.
c) there is no silver bullet
Here's some information about Mayo Clinic's approach from Mayo Clinic:
- Post-COVID Conditions - Mayo Clinic Proceedings 2023
Michael R. Mueller, MD, Ravindra Ganesh, MBBS, MD, Ryan T. Hurt, MD, PhD, Thomas J. Beckman, MD
DOI:https://doi.org/10.1016/j.mayocp.2023.04.007
Key takeaway
"Because presenting symptoms are often vague, the approach to evaluation should be comprehensive with consideration of other diseases that could masquerade as post-COVID conditioni (PCC). Treatments of PCC are little researched, are largely expert based, and are likely to evolve as more evidence emerges. Current therapies, which are symptom targeted, include medications and nonpharmacologic therapies such as optimizing fluid intake, compression garments, progressive activity, meditation, biofeedback, cognitive rehabilitation, and addressing concomitant mood disorders. Many patients will enjoy significant improvements in their quality of life with multimodal treatments and longitudinal care."
- Interview with Mayo Clinic Long COVID Expert Dr. Greg Vanichkachorn (2023)
I am still in the NIH study and the response is still the same. Symptoms from Long Haul vary from case to case and seem to gradually get better. The thought is that this is an aggressive virus different from any recent viruses in that it attacks each subject differently. Depending the health conditions of those infected, the virus seems to target areas of least resistance. For instance, if there is a weakness in the optical makeup, it may cause pronounced affliction to the eyes
I have heard from some of my medical people that Covid could resemble viruses from past epidemics but because of lack of records, there is no way to know for sure. And no way to look at past instances to help predict how long symptoms last.
The good news is that most are experiencing reduced symptoms with time.
I am still in the NIH study and the response is still the same. Symptoms from Long Haul vary from case to case and seem to gradually get better. The thought is that this is an aggressive virus different from any recent viruses in that it attacks each subject differently. Depending the health conditions of those infected, the virus seems to target areas of least resistance. For instance, if there is a weakness in the optical makeup, it may cause pronounced affliction to the eyes
I have heard from some of my medical people that Covid could resemble viruses from past epidemics but because of lack of records, there is no way to know for sure. And no way to look at past instances to help predict how long symptoms last.
The good news is that most are experiencing reduced symptoms with time.