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is there such a thing as zero negative Sjogren’s?

Autoimmune Diseases | Last Active: Jan 21 10:31am | Replies (12)

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@sarahm73

I developed several autoimmune diseases from Covid/vaccine (my body created antibodies that turned against me), both antiphospholipid syndrome (clotting disorder) in Fall 2021 and Sjogren's May 2023. My onset of severe symptoms (muscle weakness, debilitating joint pain, brain fog, etc) didn't have me seeking answers until early 2023, but had antibody testing done with a rheumatologist and got the Sjogren's diagnosis. Because I am on blood thinners with my antiphospholipid syndrome (had acute saddlebag PE and DVT in Oct 2021), my only option for meds for Sjogren's was hydroxychloroquine (Plaquenil). I will say, I began taking it in June 2023, and by mid July I saw a majority of my extreme symptoms and pain resolved. I can still get flares, but the meds were a game changer for me. For the first time in over a year I had a sense of normalcy. I also transitioned with the the meds to an anti inflammatory diet, which had great results for me even before I started to reap the benefits of the hydroxychloroquine at 6-12 wks.

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Replies to "I developed several autoimmune diseases from Covid/vaccine (my body created antibodies that turned against me), both..."

Thank you so much for that information. We are hoping to get my sister on Plaquenil soon. It has been agonizing to watch her suffer from the effects of Sjogren's' over the past 2 years when the symptoms became more severe. I'm so glad you have found relief, and thank you for sharing your experience, and helping others find the same.
Sincerely,
Linda Kinzler