@vera101
Welcome to the forum. I am so sorry about your vision problems. One of the most challenging aspects of a blood disorder diagnosis is finding the right physicians to sort out which of our symptoms may be attributable to the M protein in our blood. Getting an accurate diagnosis is the first step.
It sounds as though you plan to go for a thorough workup at the Mayo Clinic. That seems like a good first step.
There are precursor conditions such as MGUS (monoclonal gammopathy of unknown significance) or smoldering multiple myeloma). You need to know exactly what your diagnosis is, then you will be able to sort through treatment options with your medical provider.
Make sure you get a good hematologist/oncologist You need one who will listen to all of your concerns and answer all of your questions.
Write them down before hand. Take someone in the room with you when you talk to the doctor because it’s hard to remember everything when there is so much information.
Even though MGUS is considered to be a benign condition in that it is not cancer, some MGUS patients have conditions such as neuropathy which are likely attributable to the MGUS. Your physicians will have to sort out the cause-effect of your vision impairment and treatment response. It’s maddening to have to wait when you need answers, but since everyone who posts in this forum is diagnostically unique, we can only empathize. This is a good place to find support and encouragement. There are some very fine humans here who are interested in your journey. Let us know how your Mayo visit goes.
Patty