Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Ramakambhtla...I also have a heart condition. This was one of the reasons I stopped taking Methotrexate. For some reason it was adding to my pain. I was so severely in pain that I was concerned I was having a heart attack. I never did get it checked, but I do have a call into my Cartiologist. My granddaughter is a nurse and she was very upset that I was taking Methotrexate. It is poison to my system. This is my third day without it and my legs feel so much better. I started using Ibprophren yesterday. I am so afraid to let my doctor know as I bet she cancels me as her patient. Well maybe that best. I mean it, I was becoming a vegetable. I could not stay awake and I could hardly walk. Bags under my eyes turning blue. I thought my body was preparing to die. It was terrible. For those of you who take it and can handle it, great...but not me.

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@oregongirl

Ramakambhtla...I also have a heart condition. This was one of the reasons I stopped taking Methotrexate. For some reason it was adding to my pain. I was so severely in pain that I was concerned I was having a heart attack. I never did get it checked, but I do have a call into my Cartiologist. My granddaughter is a nurse and she was very upset that I was taking Methotrexate. It is poison to my system. This is my third day without it and my legs feel so much better. I started using Ibprophren yesterday. I am so afraid to let my doctor know as I bet she cancels me as her patient. Well maybe that best. I mean it, I was becoming a vegetable. I could not stay awake and I could hardly walk. Bags under my eyes turning blue. I thought my body was preparing to die. It was terrible. For those of you who take it and can handle it, great...but not me.

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Oregongirl you made the right decision for you ,sounds like your body was trying to tell you ,this is wrong med.listen to your body about meds if it doesn't feel right stop it also listen to your granddaughter on e nurse to another. Glad you feel better.If your cardiologist let's you go she isn't thinking of your best interest ,you can find another.

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@oregongirl

Ramakambhtla...I also have a heart condition. This was one of the reasons I stopped taking Methotrexate. For some reason it was adding to my pain. I was so severely in pain that I was concerned I was having a heart attack. I never did get it checked, but I do have a call into my Cartiologist. My granddaughter is a nurse and she was very upset that I was taking Methotrexate. It is poison to my system. This is my third day without it and my legs feel so much better. I started using Ibprophren yesterday. I am so afraid to let my doctor know as I bet she cancels me as her patient. Well maybe that best. I mean it, I was becoming a vegetable. I could not stay awake and I could hardly walk. Bags under my eyes turning blue. I thought my body was preparing to die. It was terrible. For those of you who take it and can handle it, great...but not me.

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Ramakambhtla, Hi, I used to take Methotrexate. After a few years of taking it, (methotrexate), I contracted a very, very rare cancer. I was also on hormone replacement therapy for low testosterone. I was told to give up both as both were suspects for having caused the rare cancer. I don't remember why you were taking Methotrexate, I was taking it for Psoriatic Arthritis which is also an immune disorder. I was diagnosed as having PS by two different Rumatologist and my GP. I later began to practice Spring Forest Qigong. After a few years of Qigong and many healing sessions with my teacher, a third Rumatologist said I no longer had Psoriatic Arthritis. Never underestimate the ability of your body to heal itself. I had radiation and huge doses of Chemo for cancer and not only did I live but my tumor was no longer malignant when it was removed. That is even rarer than the cancer itself. I wouldn't try to fight a serious disease with just Qigong but I wouldn't try to fight a disease without it. You can get Qigong practitioners to work on you from long distances away, you don't have to be present. Yea, I sound crazy and maybe I am but I've also seen two miracles in my own life that can be credited to Qigong.

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@ramakambhatla

Hardly I know, about ESI at a specific site for relief of pain, I am rather perplexed about using pain pump with 100-300 times the relief! Is this being done, at Mayo clinic? I have had an MRI, showing DDD with no information from the few spine surgeons, that I consulted, as to the procedure. Briefly,
a nerve block was mentioned. I am just trying to be happy with the routine
activities, that I am able to do. I would like to know as to how and who is
taking part in this procedure, like : Neurosurgeon, spine surgeon. Thanks for
a reply, in this reference.

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WSH... Very well said. The best intentions of some people can cut deep. I just finished an entire week of a very painful episode. I have RA. I was diagnosed with Fibro but about three years ago, the blood tests were changing. My pain this past week was as though my body was trying to shut down. I can't get into my Pain Mgt doctor as I am still waiting for the doctor to send the referral. My Insurance does not require the referral, but the Pain Doctor requires it. I think most doctors want to stay as far away as they can from the "drugs". Nevermind the med I am given for RA is poison. I give myself a shot once a week of Methotrexate. Then two infusions in a month. I was so sick for over a week that I stopped the Methotrexate. I actually started to improve. I agree until you have had to walk in our shoes with our own particular pain please do not judge. Obviously, the person doing the judging has not suffered the pain I have. And, many of you.

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@oregongirl

Ramakambhtla...I also have a heart condition. This was one of the reasons I stopped taking Methotrexate. For some reason it was adding to my pain. I was so severely in pain that I was concerned I was having a heart attack. I never did get it checked, but I do have a call into my Cartiologist. My granddaughter is a nurse and she was very upset that I was taking Methotrexate. It is poison to my system. This is my third day without it and my legs feel so much better. I started using Ibprophren yesterday. I am so afraid to let my doctor know as I bet she cancels me as her patient. Well maybe that best. I mean it, I was becoming a vegetable. I could not stay awake and I could hardly walk. Bags under my eyes turning blue. I thought my body was preparing to die. It was terrible. For those of you who take it and can handle it, great...but not me.

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I am being seen by the University of Texas medical center. She is not what I was used to. I sent a text again today asking for an appointment. Tomorrow I will call my Primary and her get on this. I believe that the Methotrexate was damaging my heart. I feel so much better

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@oregongirl

Ramakambhtla...I also have a heart condition. This was one of the reasons I stopped taking Methotrexate. For some reason it was adding to my pain. I was so severely in pain that I was concerned I was having a heart attack. I never did get it checked, but I do have a call into my Cartiologist. My granddaughter is a nurse and she was very upset that I was taking Methotrexate. It is poison to my system. This is my third day without it and my legs feel so much better. I started using Ibprophren yesterday. I am so afraid to let my doctor know as I bet she cancels me as her patient. Well maybe that best. I mean it, I was becoming a vegetable. I could not stay awake and I could hardly walk. Bags under my eyes turning blue. I thought my body was preparing to die. It was terrible. For those of you who take it and can handle it, great...but not me.

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WSH I totally agree with you on my body telling me to quit. I threw up at least 10 or 11 times in last two weeks. I had Psoriatc Arthritis
for many years. I would complain to my doctor and he would tell me what to do next. Finally after many years, the RA doctor started me on a treatment and the sores are almost all gone. I could never wear short sleeves or backless dresses. Doctors should admit when they do not know something well enough to treat it. I suspected I was showing signs of cancer. My RA doctor has me going to a oncologist. He takes blood and tells me everything is ok and come back in 3 months. FOR WHAT? Is he waiting for something? Was this drug given to me to see if it will produce cancer. I hate to think that. I actually went shopping tonight with my daughter in law. God is good.

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@oregongirl

Ramakambhtla...I also have a heart condition. This was one of the reasons I stopped taking Methotrexate. For some reason it was adding to my pain. I was so severely in pain that I was concerned I was having a heart attack. I never did get it checked, but I do have a call into my Cartiologist. My granddaughter is a nurse and she was very upset that I was taking Methotrexate. It is poison to my system. This is my third day without it and my legs feel so much better. I started using Ibprophren yesterday. I am so afraid to let my doctor know as I bet she cancels me as her patient. Well maybe that best. I mean it, I was becoming a vegetable. I could not stay awake and I could hardly walk. Bags under my eyes turning blue. I thought my body was preparing to die. It was terrible. For those of you who take it and can handle it, great...but not me.

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All the time .Your throwing up might just been getting that drug out of your system.Will hope so.Bet it felt good to get out and go shopping.

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Lioness, you got that right. She wanted me to go with her last night. But, I was still pretty weak. I did ride with her to the pharmacy for my refills. But she could tell that I was not well enough to go anywhere. So, this morning I woke up feeling pretty darn good. The my little dog got out. I had to chase her down. That nearly killed me. Literally. I came in a flopped on my bed. I know my heart has been damaged from all this STUFF I am taking,. I have once again requested an appt with the Cartiologist. Oregongil

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wsh66: Hi.. What is the cancer? Some chemotherapy medications used for one cancer may cause another cancer.
I am interested to know, how this rare cancer is diagnosed? Hope things get better, tho' the history looks perplexing.
Try to reply.

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Any cardiologist, does not feel comfortable with many non-cardiac meds. Try to talk about the 'STUFF' and may get
clarified about any questions. I have few meds. and tried to reduce many. It is strange that even few Viamins are
being stopped. It is possible that some meds., may have side-effects with cardiac meds, including heart. I have
verified with Medscape-Drug Interactions, and few minor are OK, but, some are advised to be stopped, or use
alternate drugs instead.

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