1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

lioness | @lioness | Jan 16, 2018
In reply to @virtuous69 "Hey everyone: Virtuous69 here, Have not been on Mayo Connect site for some time. Major Fibromyalgia..." + (show)
@virtuous69

Hey everyone: Virtuous69 here, Have not been on Mayo Connect site for some time. Major Fibromyalgia flareup,achy knees and cervical stenosis on top of all my other spinal issues. I wanted to cry when I read some recent posts, not only about Fibro, but internal scar tissue and abdominal pain which I have not posted anything about, because of the other issues. Have had one C-Section and a hysterectomy where obgyn surgerion found a web of mangled stuff and endometrious after being told I had a very healthy uterous. I scar tissue easily and I know I have massive scarring in my abdomen. Further exploratory surgery would probably add more adhesions. Some times my intestines seem to turn themselves iinside out if doing any mild abdominal exercises. Agree about magnesium helping with leg cramps. Had two hip replacements and knees are now starting to complaiin quite a bit.
And yes stress aggrevates my Fibro to the max. My husband is nearing 80 and I see his personality changing quite a bit with hearing loss and cataracs. We live from penny to penny and must move from our adult community mobile home in San Jose very soon. Had to let housekeeper and gardener go, and our charming place has gone to wrack and ruin. I also joined the :"Just want to talk group" and met IndianaScott (volunteer mentor with great sense of humor. who was very encourageing.. I
I live very near Los Gatos and think I've heard of Dr. Cook. I'm supposed to get some blood work done for my diabetes and liver function, but cannot go, as Medicare and Aarp not covering blood work. Since when. ??? I applaud all of you. We all have our version of meds, and treatments, and its hard to believe we have to suffer like this for a lifetime. I have a very strong believe in Jesus, and try to manage a grateful spiriit. I have a loving husband, who in his nervous state yells alot and seems like a different person from 2 years ago. I am not able to handle his off and on again personality changes and its my respoinsibility to get this mobile home cleaned, deflead, powerwashed,, painted, and carpet steamed with no extra money. We must move out of the Silicon Valley to another county or state. Weather is a big factor for my fibromyalgia. Dear new ones, hang in there, that is all we can do after working on diet and getting all the info we can to live healthier.lives. Mayo connect is the only support I have and so grateful I can go there and even complain about my lot when I''m overwhelmed
. P.S. I was invited to jump into a discussion about upper leg pains, and I was in such a depressed funk, I could not write on Connect. I think it was change in weather. I use a knee brace and any good arthristis cream for joint pain when needed. My PT used to help alot with Ultra Sound and massage. I've wondered if he could ultra sound my intestines to soothe them down.(??) Is that even possible??
Love you all, Dori

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I am 75 and the one thing that does help me is to keep active I start slowly with some stretching Ages ago the class I took when first diagnosed was to tighten your muscles then relax but I have to exercise then Epsom salts when U hurt ,mine is my thighs.,but to sit all day isn't good.When a flare up ,I don't want to do it but gradually I start Tramadol when needed.Advil and Tumeric on those days.

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peach414144 | @peach414144 | Jan 16, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

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dear justin, the knee is worse. thank you for caring. this is about the beginning of the fourth month now. i made an appointment with a group of doctors that say they have a way of getting the needle to the exact or correct spot to insert. i need to wait about 17 more days for the appointment. who knows? is this a way to get customers? will go anyway. my knee hurts in the inside part of the knee close to the other leg. the outer part is fine. never had this happen before. it is usually the entire knee like the pain wraps around it. will let you know.

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jlfisher56 | @jlfisher56 | Jan 16, 2018

yes I forgot, I do an exercise program also...daily stretches. Since 2014 I have many different ones to exercise my limbs, neck, back, trunk, etc. Some are in a sitting position. Very good especially when you can't walk or be very active to keep your core strong. I heard tumeric was excellent as an anti-inflammatory and people having positive experiences with it. I have gastroparesis, so my stomach is very sensitive to many medicines and tried the powder...went so so.

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2 replies
lioness | @lioness | Jan 16, 2018
In reply to @jlfisher56 "yes I forgot, I do an exercise program also...daily stretches. Since 2014 I have many different..." + (show)
@jlfisher56

yes I forgot, I do an exercise program also...daily stretches. Since 2014 I have many different ones to exercise my limbs, neck, back, trunk, etc. Some are in a sitting position. Very good especially when you can't walk or be very active to keep your core strong. I heard tumeric was excellent as an anti-inflammatory and people having positive experiences with it. I have gastroparesis, so my stomach is very sensitive to many medicines and tried the powder...went so so.

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My stomach is website but I use Turmeric incapable for,drink a lot of milk with it for pain I found a tea that works for me it's Arnica tea I found it at Rite Aid

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lioness | @lioness | Jan 16, 2018
In reply to @jlfisher56 "yes I forgot, I do an exercise program also...daily stretches. Since 2014 I have many different..." + (show)
@jlfisher56

yes I forgot, I do an exercise program also...daily stretches. Since 2014 I have many different ones to exercise my limbs, neck, back, trunk, etc. Some are in a sitting position. Very good especially when you can't walk or be very active to keep your core strong. I heard tumeric was excellent as an anti-inflammatory and people having positive experiences with it. I have gastroparesis, so my stomach is very sensitive to many medicines and tried the powder...went so so.

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Sorry I hate this word spell .As I said my stomach is sensitive so I take Turmeric with milk

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jlfisher56 | @jlfisher56 | Jan 16, 2018

I do not like milk lol but eat yogurt. I have it in powder. The nerves to my stomach are damaged (gastroparesis); so many drugs just stay there causing nausea and vomiting. Very sensitive. Gummy and chewable vitamins I also need to take. The turmeric powder I just look at because of the former nausea/vomiting I used to get. I should try it with yogurt again I guess. Wish they'd have chewable or gummies. I needed botox for my LES in the stomach due to constant nausea and vomiting daily. Leaves that bad "memory". Some of my medications and cervical cord compression were the cause.

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1 reply
lioness | @lioness | Jan 16, 2018
In reply to @jlfisher56 "I do not like milk lol but eat yogurt. I have it in powder. The nerves..." + (show)
@jlfisher56

I do not like milk lol but eat yogurt. I have it in powder. The nerves to my stomach are damaged (gastroparesis); so many drugs just stay there causing nausea and vomiting. Very sensitive. Gummy and chewable vitamins I also need to take. The turmeric powder I just look at because of the former nausea/vomiting I used to get. I should try it with yogurt again I guess. Wish they'd have chewable or gummies. I needed botox for my LES in the stomach due to constant nausea and vomiting daily. Leaves that bad "memory". Some of my medications and cervical cord compression were the cause.

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So sorry to hear about your stomach ,hard to deal with pills.Can out do the patch like Lidocaine transdermal patch? Or any of the pain patches?

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dkrobinson | @dkrobinson | Jan 16, 2018

I have had a failed lumbar fusion L5 -S1 in November 2011 and a cervical fusion in February 2017. With Lumbar fusion I knew something wasnt right the 1st week. Nobody should have been in that much pain. Oh the extreme leg, feet and ankle cramps. The extreme fasiculations that they say are harmless but not when your whole muscle is going off your bone. 6 years later pain isnt any better in low back. Its my understanding nerves are wrapped up within my fusion. No dr wants to touch it. Had a dura tear too. Been to several different neurologist and i always get the impression they dont want to touch someone elses work. The neurologist that did my neck his assistant said we will just send you back to original dr. Really why would i go back there. Had to learn to walk right after. Any small dent in ground would make me fall. Tried all the standards after, nothing helps. Been in pain mgt for 6 yrs. New Dr beliefs are to lower pain meds. I was on a month reduction program. Its not working..quality of life is reduced more...Had 2 buldges in neck, they only fixed one, said other one wasnt touching spinal cord, well now hands and arms are more numb than the 1st time. Only can imagine 2 buldge is touching now. Just had recent lumbar mri and yep other disc are going bad now. What an introduction....

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1 reply
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 17, 2018
In reply to @dkrobinson "I have had a failed lumbar fusion L5 -S1 in November 2011 and a cervical fusion..." + (show)
@dkrobinson

I have had a failed lumbar fusion L5 -S1 in November 2011 and a cervical fusion in February 2017. With Lumbar fusion I knew something wasnt right the 1st week. Nobody should have been in that much pain. Oh the extreme leg, feet and ankle cramps. The extreme fasiculations that they say are harmless but not when your whole muscle is going off your bone. 6 years later pain isnt any better in low back. Its my understanding nerves are wrapped up within my fusion. No dr wants to touch it. Had a dura tear too. Been to several different neurologist and i always get the impression they dont want to touch someone elses work. The neurologist that did my neck his assistant said we will just send you back to original dr. Really why would i go back there. Had to learn to walk right after. Any small dent in ground would make me fall. Tried all the standards after, nothing helps. Been in pain mgt for 6 yrs. New Dr beliefs are to lower pain meds. I was on a month reduction program. Its not working..quality of life is reduced more...Had 2 buldges in neck, they only fixed one, said other one wasnt touching spinal cord, well now hands and arms are more numb than the 1st time. Only can imagine 2 buldge is touching now. Just had recent lumbar mri and yep other disc are going bad now. What an introduction....

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Hello @dkrobinson,

That was quite an introduction, but one I am sure fellow Connect members can relate to and appreciate. I am sorry to hear about your past 6 years and the frustration you have had with your back issues. If I may, I suggest checking out the following discussion that is centered around back surgeries. In the discussion you will meet many other members who know what you are going through, https://connect.mayoclinic.org/discussion/surgical-solutions-to-chronic-cervicalback-pain/.

I recommend clicking on the above link and reading through some of the other members' stories and solutions. I look forward to reading more about you.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 17, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

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Thank you for the update. I had an injection on my left shoulder a few months back. They used ultrasound to find the right spot. It was a weird sensation and I was also told that it would take up to ten days to feel the affect. I also did not notice a huge difference. However, now that it has passed I do think it helped but I was just not aware of it in the morning. I wish you success and would love to hear your progress.

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