1. < Brain & Nervous System

Pick's Disease

Posted by lynnfay48 @lynnfay48, Aug 9, 2011

my husband has just been diagnosed with Pick's Disease, which is a form of demencia. If anyone can help with info about care, please respond

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Linda L. | @lindal | Nov 14, 2011

GET A SECOND OPINION! This is a very serious diagnosis with no happy ending. I was misdiagnosed with this twice, it really put my family through something no one should ever have to go through. You can get on internet on webmd to get medical information that your dr. Should have provided. Good luck will send prayers your way!

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2 replies
lynnfay48 | @lynnfay48 | Nov 27, 2011
In reply to @lindal "GET A SECOND OPINION! This is a very serious diagnosis with no happy ending. I was..." + (show)
@lindal

GET A SECOND OPINION! This is a very serious diagnosis with no happy ending. I was misdiagnosed with this twice, it really put my family through something no one should ever have to go through. You can get on internet on webmd to get medical information that your dr. Should have provided. Good luck will send prayers your way!

Jump to this post

Just saw your email, have been moving and had disconnected my computer. Thanks for the reply, and could you tell me what your symtoms were that caused you to be diagnosed with Picks. I took my husband to a neurologist and he confirmed what our family dr had told us after getting a pet scan.

REPLY
Linda L. | @lindal | Nov 28, 2011
In reply to @lindal "GET A SECOND OPINION! This is a very serious diagnosis with no happy ending. I was..." + (show)
@lindal

GET A SECOND OPINION! This is a very serious diagnosis with no happy ending. I was misdiagnosed with this twice, it really put my family through something no one should ever have to go through. You can get on internet on webmd to get medical information that your dr. Should have provided. Good luck will send prayers your way!

Jump to this post

I am really glad that you followed up with neurologist and pet scan. I was having lots of trouble forgetting things and trying to figure out the simplest chores, such as how to turn a faucet on. I also had very strange mood swings and MRI showed a lot of gray matter spots which they thought were spreading thru my brain. I have pretty bad tremors and could not do any of the neurosysch testing. Since I have not gotten any worse and MRI have not changed they have changed diagnosis but I am still not sure they really know what's to come. Sincerely hope you and your husband all the best. Please keep in touch and let me know how he is doing.

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