Swelling and stiffness, 3 years after total knee replacement

Posted by bengalady @bengalady, Oct 9, 2019

I had knee replacement 3 years ago. It is worse than previous knee pain, and getting worse as more time goes by. My surgeon (in another state) says everything normal based on X-ray. Ortho doc here says the same, and said I’m having pain and he referred me to pain clinic for possible nerve block. I want to know WHY am I having pain, although I didn’t call it pain. ROM is 100. They can’t see everything on X-ray. I want an MRI. Want to go for second opinion. Should I tell new doc I’m there for second opinion, I don’t think that’s necessary......I think that would cause some bias, ie they would just say same thing.
Has this happened to anyone ? Thoughts ?
TIA

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@gardeningjunkie

I had to pay for blood testing for the knee implant parts. It's the best $600.00 I ever spent. If you are allergic it must come out, once allergic always allergic and the reaction time and severity will only get worse.

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I should specify that for the knee implant component blood test I didn't have to see an allergist. The blood was drawn at the orthopedic hospital and sent back to Chicago to a lab which tested for about 8 different metals and the bone cement.
A 5 Day Patch Test Panel can be given by an allergist or dermatologist licensed for this test and the entire panel runs about $1,500 but there is a separate metal panel which I imagine would be less.
Ortho said the blood test was more accurate. In my case I tested positive to 5 or 6 metals (not to titanium, yet was told traces of other metals are in titanium so it couldn't be considered). I did not test positive to bone cement. A surprise to me as I am allergic to several other types of adhesives.

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@donmckibben

Isn’t that amazing! I had double knee replacement 3 years ago at Mayo Clinic and had same outcome. I just sent X-rays to the surgeon for follow up and they said the knees look fine even though in the report I filled out I had expressed issues with pain and stiffness. As long as X-rays look fine they don’t care about any other issues you may have. I have lost a great deal of respect for the Doctors that I have dealt with at the Mayo Clinic. Not helpful in trying to resolve issues.

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May I ask the names of the Drs you saw at Mayo?

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@coco

May I ask the names of the Drs you saw at Mayo?

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I did not see any Doctors at Mayo.

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@coco

May I ask the names of the Drs you saw at Mayo?

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Dr. Taunton. Excactly the same response that I received. Xrays are fine and nothing more they could do. I too have lost respect for the Mayo Clinic doctors!

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@donmckibben

Dr. Taunton. Excactly the same response that I received. Xrays are fine and nothing more they could do. I too have lost respect for the Mayo Clinic doctors!

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I had a partial knee replacement and the pain never went away, After 2 years the Dr. told me that it did not hold and that I needed a total knee replacement that the cement had cracked. My body had rejected the replacement. So I let him do a total knee replacement. The outcome is the same. Pain all the time. So he is sending me to Pain Management for an ablation of the nerves in the knee. He says this will relieve the nerve pain. Xrays show the knee is fine. It is the nerves sending pain signals to my brain. Maybe my brain needs and adjustment??? I will never have another surgery. Doctors messed up my shoulder with 2 surgeries and now want to do another one. No thank you......

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@auntb1947

I had a partial knee replacement and the pain never went away, After 2 years the Dr. told me that it did not hold and that I needed a total knee replacement that the cement had cracked. My body had rejected the replacement. So I let him do a total knee replacement. The outcome is the same. Pain all the time. So he is sending me to Pain Management for an ablation of the nerves in the knee. He says this will relieve the nerve pain. Xrays show the knee is fine. It is the nerves sending pain signals to my brain. Maybe my brain needs and adjustment??? I will never have another surgery. Doctors messed up my shoulder with 2 surgeries and now want to do another one. No thank you......

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I too had TKR with never ending pain, then nerves cut , then revision, still server pain. Next week it will be PNS , nerve stimulator. Who knows NOT THE DOCTORS. THE SEARCH CONTINUES. PEACE

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You know, I am shocked and angry that so many people over past few years have less than excellent results with TKR. Is it the surgeons that aren't qualified? Or is it such difficult surgery that it is expected to have post surgery problems? This is a "common" surgery now so they should know how to do it.
I had Left TKR in 2015 and it was perfect; no real pain; just some aches. Walked right away. Played sports after 6 months. 3 years later I had TKR in Right leg with a different surgeon (unfortunate decision on my part). This TKR was good (I thought) and again I did not have much pain and walked right away. But this leg was a little numb from day 1. This leg had red, nasty blisters around the scar area. They itched. Never saw anything like it - they decided I was allergic to latex. Really?! I have never been allergic to anything except poison ivy. Both knees are straight (yay). Walking is good. Going downstairs is slow. I play a racquet sport 3 times a week and work out in gym. My ROM is not great 112-115, but I can deal with that. Concern is the numbness and the tight band feeling in Right leg 2 years later. However, I will say every 6 months the tight band feeling improves. That's the good news. I have had slight swelling in that leg since surgery and it does not go away. I always tell surgeon about the numbness; but he does not really comment. Now I am getting the picture that nerve damage occurred during surgery. I think that is why the numbness. New problem now. When I run playing sports sometimes that leg feels like it might buckle (but it doesn't). I feel a slight flutter in the calf and my leg does not quite get the message it should "run". It hesitates (slightly). Well, it turns out, that we think the nerve was damaged (either cut or nicked). Apparently, the flutter feeling in the calf is a result of the nerve not sending a message to the muscle (sometimes). And the muscle can/will atrophy. Scarey!! I was so concerned, I returned to PT. I had a totally amazing PT. He really listened and he explained exactly how I should do certain exercises. He tailored the exercises to specifically strengthen that leg and surrounding muscles that I use when playing my sport (running and bending). Very interesting. I believe it is called "Specificity" in athletic training - it targets specific muscles just for that sport. So I am doing them. Sometimes I think it helps, but not sure yet. I am so upset that there is nerve damage and no one owns up to it. So, do I have to do these exercises for the rest of my life? Another thing with this Right leg is that I feel it "pitches" my body forward. When I bend it is as if I might fall forward (but I don't). I used to have very good balance; now it is less good. I have nightmares that someway I will need to have my leg amputated if my muscle atrophies?!!!?? It is an overreaction on my part. Why is there no direction from the surgeon? He is attentive and very nice and has a good reputation (I research all my surgeons). But he seems to be surprised that I have this nerve situation and that my body pitches forward when I bend. Am I just supposed to accept this less-than-perfect result? I am looking for perfection as in the first leg TKR. I feel I should be happy I can be as active as I am. But I want a better result. Sorry to be so wordy. I know others are suffering more than I am and I am sorry for that. Doctors should be frank when there is a problem.....

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The Dr. that did my knee replacement said that my knee would always be numb right in the middle of the knee. I wish it was numb all over because of the pain. Has anyone used any type of cream that has helped with the pain? It has been 3 months and my knee hurts more now than it did before I had surgery. It hurts more than the partial that I had done 2 years ago. Could I be allergic to the product? I ask the Dr. if I could be and he said "NO". But no testing was done before surgery.

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I still have swelling and fever in my knee.

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@donmckibben

Dr. Taunton. Excactly the same response that I received. Xrays are fine and nothing more they could do. I too have lost respect for the Mayo Clinic doctors!

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@donmckibben I am sorry to hear about your situation with your TKR. I encourage you to reach out to The Office of Patient Experience. Here is the link with the contact information (web form and telephone number): https://www.mayoclinic.org/about-mayo-clinic/patient-experience

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