Eliminating Foods for Neuropathy pain

Posted by avmcbellar @avmcbellar, Jul 20, 2019

I have tried doing without certain foods and drinks containing caffeine and have discovered it helps me to lower my neuropathy pain to a level that is tolerable. It is not easy to eliminate chocolate, tea, and coffee from my diet.

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@helennicola, @catro I also only eat a few carbs, no alcohol, and no caffeine. It seems to help each day for my neuropathy. Perhaps the carbs cause less blood circulation briefly because of the neuropathy although I am not a diabetic. Limiting my carb intake to 100 grams or less per day seems to be very helpful for me. My 90 yo mother does the same and it helps her have less pain with her neuropathy. About 3 years ago she was diagnosed with diabetes but the neuropathy she had many years before. Her diabetes is very well managed with food and diet. She takes no oral medications or subcutaneous injections of insulin. Every 3 months her PCP orders a hemoglobin A1C with positive results for her blood sugar. Keep trying to avoid or eliminate certain foods from your diet to see what works best for you. Hope this helps. Wish you well.

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@helennicola

@catro, I have read about that somewhere, I don’t understand the connection though. I don’t have that problem but have wondered about too many carbs or sugar also causing a problem for me so I limit myself. Alcohol is the worst for me, even 1/2 glass of wine will trigger a bad night. Helen

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@helennicola
@catro
Good morning,
I’ve never had any problems with foods.
Can’t speak to what alcohol or caffeine would do because I’ve never had it other than the caffeine that comes in chocolate of course. I did used to drink Dr Pepper which I think has caffeine in it but I don’t drink it anymore because of my diet and I never noticed any difference while I did drink it. I also used to eat tons of carbs it and never noticed a difference there either but I guess everybody’s different.
Jake

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@catro

I have a very strong reaction to nightshades. Potatoes cause a severe flair up, as do tomatoes, and it doesn’t take more than a little bit. This has come on relatively recently as my PN has progressed. Has anyone else had this experience?

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@catro My small fiber peripheral neuropathy is sensitive to carbs like potatoes. Carbs can really make my feet burn. So, I limit carbs and I have learned that if I exercise really hard for 30 to 40 minutes every other day it reduces my pain and susceptibility to carbs. It is difficult to get an intense workout when it hurts my feet to stand very long but I do what I can. My feet are also sensitive to heat even though they are numb. So, no covers on my feet at night and rarely do I wear socks and shoes.

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I've tried correlating flare-ups with anything that I've eaten, done, touched, thought, any place I've been, the season of the year ... zip, I can't find any cause. Lately, I've tried taking a naprosin tablet at night and I think it's helping with the morning pain (the naprosin lasts 12 hours). Once I'm up and moving around and I've taken the morning meds, I start to feel almost normal - evening is when I feel the best. But when flare-ups happen, I'm hurting all day every day, nothing helps. Peggy

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I keep learning the hard way - what I call “black and blue learning” - the things that cause my PN to flair up. Recently I have started drinking different types of tea and when I tried one with rooibus, a shrub grown in South Africa that is supposed to be good for the immune system- but was bad for me. I’m still feeling the effects two days later.

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Hi @catro what were the effects you were feeling? It would interesting to know since I often drank that tea before my neuropathy without any issues.

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@avmcbellar

Hi @catro what were the effects you were feeling? It would interesting to know since I often drank that tea before my neuropathy without any issues.

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@catro & @avmcbellar - I've also drank the tea with rooibus but it was in an organic tea in a bottle. I didn't really know about the benefits until I did a little searching.

Medical News Today - 7 benefits of rooibos tea: https://www.medicalnewstoday.com/articles/323637

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@catro I too drank the tea Rooibus I do like the taste didn't notice any side effects I would like to know what you experienced and was it due to other things a interaction with meds or something?

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@jenniferhunter

@hotfooted I understand your situation. I was in a similar situation with my elderly disabled parents who had promised each other never to go into a nursing home, and after my mom fell and broke her pelvis, foot and ankle, I had to help take care of them both and I was never home. My dad also broke a hip and both were in wheelchairs. I would hire caregivers when I could find them and most couldn't pass a background check, and the care giving companies didn't want to service this rural area, and I had to relieve the hired help, and handle all the things an employer has to do, and my parents didn't want to spend money on their care, so we were limited to their social security for resources. The nursing home had decreed 24 hour care was mandatory and hence the need to pay for that, and that is more than one person can do without help. We tried to find assisted living, but they rejected my dad, so the only other option was an in home caregiver situation. I didn't get help from siblings, so all of it fell on me, and during this time, my spine condition caused constant pain. I needed surgery, and saw 5 local surgeons, none of which would help me, but I helped get my mom through ankle surgery that was needed because her tendons shortened after the fractures healed. My dad was an end stage heart patient and became an invalid, and I was exhausted all the time and grieving his loss. Essentially this was just like a nursing home, and I was doing necessary things that a daughter shouldn't be doing for her dad. When he did pass, I finally could take care of my own health issues, and that is when Mayo called with an appointment for a spine consult. I had surgery at Mayo, and rested and healed. I was in a neck brace for 4 months and couldn't drive and I heard lots of complaints about how much longer would it be until I could drive again and come back to all the chores and responsibility that the others didn't want to do. My parents just expected me to give up my life for them, and didn't expect this of my siblings. My siblings are a lot like your son, and they put themselves first, and step back so that I will need to take responsibility. My parents didn't accept the realtity of the situation or that they we unable to take care of themselves. Some of that was because my dad had a traumatic brain injury in his 60's and lost the ability for good judgment and reasoning, but he thought he was fine. My mom is still living, and doesn't drive, but she is able to live on her own now and stays in her wheelchair. I still do things for her and take her to appointments, but I can go back home. This takes over your life, and there is very little left over, and I still have all the responsibility. Still with as hard as all this was and still is, I would do it again. I need to be able to live with myself, and I wouldn't like myself if I acted like my siblings. Since my surgery at Mayo a couple years ago, I am doing fine, and I'm here is you need to talk. These were the hardest years of my life.

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Dear Jennifer Hunter.. Our lives of caregiving our demanding family members takes ours over completely when we let it.. I've been off Mayo Connect for a very long time.. I apologize for my inconsistency and not following up with you previously. Now my son has passed away.. Of course other loved ones have needed my attention since.. It's been rough.. My only granddaughter was diagnosed Bipolar2.. I won't even go into all the changes, etc. that has entailed. Suffice to say tho, she is with her mother now, has a job that she's loving, and is beginning to make a new life for herself in a new location.
My husband has had several life altering diagnoses and we've been coping with those.. At present he is doing well, thank goodness.. Naturally, we know that everything can change in an instant.. but I'm still strong!
Our remaining son and his wife are coping with overload now.. We can't help with that, except to provide a safe place to unload now and then.. They are overworked and overloaded with her mother's ill health and unfair demands.. sigh...
So hopefully you are healthier than you ever were... maybe you don't have to be a caregiver for anybody now? and you are able to enjoy your own life as much as possible from now on.. I pray that it's so! I'll watch for your messages as time permits... blessings on you....

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@hotfooted

Dear Jennifer Hunter.. Our lives of caregiving our demanding family members takes ours over completely when we let it.. I've been off Mayo Connect for a very long time.. I apologize for my inconsistency and not following up with you previously. Now my son has passed away.. Of course other loved ones have needed my attention since.. It's been rough.. My only granddaughter was diagnosed Bipolar2.. I won't even go into all the changes, etc. that has entailed. Suffice to say tho, she is with her mother now, has a job that she's loving, and is beginning to make a new life for herself in a new location.
My husband has had several life altering diagnoses and we've been coping with those.. At present he is doing well, thank goodness.. Naturally, we know that everything can change in an instant.. but I'm still strong!
Our remaining son and his wife are coping with overload now.. We can't help with that, except to provide a safe place to unload now and then.. They are overworked and overloaded with her mother's ill health and unfair demands.. sigh...
So hopefully you are healthier than you ever were... maybe you don't have to be a caregiver for anybody now? and you are able to enjoy your own life as much as possible from now on.. I pray that it's so! I'll watch for your messages as time permits... blessings on you....

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@hotfooted Thank you for your kind message and there is nothing to apologise for. We all do what we need to do and taking a break when you need it is good. I wouldn't want you to feel a responsibility to post here on Connect if that was adding to your burden. Come here when you need to be heard and to know that others will listen. My mom has been able to live on her own with assistance for traveling to appointments and grocery and medication delivery. I still get the burden of that and siblings still back out of helping. Last year, I had to stop and take time for myself because I broke my ankle and could not walk or drive or push a wheelchair. As you might have guessed, there we complaints that I was taking too long. Even just today when I told my mom one of her appointments is the same day that I will be having my surgical ankle plates removed, she says we can reschedule her appointment instead of having my sister take her which is close by and would take under an hour total time coming and going. My sister is in and out of there and can schedule her time as she likes, but they would rather leave the chores for Cinderella.

Life is good though and yesterday I had a nice day on a trail ride with my horse. I have been doing pretty well, but there may be more changes to my spine, and I will follow up with my spine surgeon about that. Last year was challenging for us with my ankle fracture, my dental work and oral surgery, and my husband had surgery for melanoma on his hand which luckily we caught in time, but we have to be vigilant about his followups and he has frequent dermatology appointments with removal of abnormal moles. Still, I feel blessed to have a wonderful husband and we support each other. He is there to help me and stand by my side. I feel that I have a safe place and refuge where I can just be. Yes, I am healthier, thank you for asking. As much as I would like to stand my ground from too many family demands, I can't let my 91 year old mom flounder on her own, so I will take her to doctors when she needs them and get after her for not taking proper care of herself. She doesn't always think things through. When all is said and done, I need to know that I did everything as best I could. I want to live with no regrets.

It is good to hear from you. As demanding as it is, care giving can bring out the best in us even when we are looking at a difficult situation. Blessings for you as well.

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