Distended abdomen

Posted by laylaa @laylaa, Apr 11, 2020

Hi everyone,
I'm hoping you could help me with a problem I've been dealing with since a very early age, for as long as I can remember.
The problem is : I have a distended abdomen, really distended, it makes me look pregnant. The thing is, I always had this stomach, at fist when I was young I thought (as my mum told me) that it was a baby belly and it would go away, the problem is that it never did. I'm now 25 years old and always with the distended abdomen, though I'm not really fat (I do have minor weight fluctuations, but the stomach always stuck with me even when I underweight) , I also have a very active work, and I don't drive so usually I walk a lot during the day (present situation excluded) .
Usually ( around 90% of the time) I contract my stomach, and it looks flat, I do have some fat in it, it isn't top model flat but it is flat. For obvious reasons I cannot do it when I'm sleeping which is pretty much the only time I let go, or if I'm laying on my stomach. I've also discovered that if I'm standing and I try to let go and not contract my abdomen anymore I start to feel very dizzy very quickly, as if my heart beat got slower and the air couldn't get it. As an addition to that sometimes (I wouldn't say often but not rarely neither) I experience a shooting pain in the area around my ribs everytime I breathe, and more often that not I feel like air is getting properly to my lungs, when I take a deep breath specially.
I've already told doctors about this two symptoms ( except for the distended stomach which I know I should have ) but they've concluded I was too stressed out, although it is sometimes true, it isn't always the case.This is a big issue for me, and couldn't even talk about it with no one, I'm sincerely hoping to find answers here.
I think I shared all the important details with you, thank you for reading me and for your help.

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@rashida

phillybomber I hear you! I have been asking for an MRI since a CT scan showed “nothing of concern” but I am in Canada where you only get tests and procedures approved by the government health plan, and since my CT is clear, “an MRI is not necessary”. I cannot afford any out of pocket tests.

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I’m so sorry to hear that but in all actuality MRI I had an MRE which is just of your intestines and honestly it showed exactly what CT scan showed so don’t worry I know it’s hard, I just found another GI doctor I pray he will see me I need another GI doc but I’m not going to get my hopes up bc I been told no to many times and it’s so sad that no doctors want to help someone who is sick Doctors take an oath to help people but in Philadelphia they can careless and I suffer and I can’t go out I refuse to I’m so sad and the fatigue and I don’t care about anything much anymore I’m so depressed over this that I don’t let people see me only my daughter and sisters and mom but I’m so frustrated with it all.

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@phillybomber

Well seen a new GI yesterday a woman and I asked about my distended abdomen and she examined me seen how I couldn’t breathe bc my ribs are pushing against my diaphragm and she said I can be like that 4 rest of my life and at times there are no answers and seen how my body is full of fluid she didn’t care So I said maybe I have adhesion or Ascites I would really like to start all over again bc I’m still not diagnosed and 5/17/23 was 1 yr and it hasn’t went down, had my gallbladder out on 12/23/22 and I said my clothes I can’t wear I started crying so she suggested I see a therapist and her assistant told me to go shopping it may make me feel better if I by bigger size. I was caught off guard bc I’m known for my mouth I go right back at anyone, I’m extremely upset I cried at middle of appt drive home and all last night and i truly don’t know what nxt move is. So I truly hope it was going to be a great visit and she was willing to help me but she said no. I said I know you can scope me take fluid from small/ large intestines and see what is going on but she wasn’t willing to take it on. I didn’t know or if it is true a distention can stay forever and at 58 I look 6 months pregnant and my answer was buy bigger size clothing

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I had similar issues with bloating and found help from a Functional Medicine practitioner. She advised me on diet restrictions. Most likely your problem is not actually your intestines - but it's how your body is handling what you eat. It's not easy but definitely worth the effort!

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@phillybomber

I’m so sorry to hear that but in all actuality MRI I had an MRE which is just of your intestines and honestly it showed exactly what CT scan showed so don’t worry I know it’s hard, I just found another GI doctor I pray he will see me I need another GI doc but I’m not going to get my hopes up bc I been told no to many times and it’s so sad that no doctors want to help someone who is sick Doctors take an oath to help people but in Philadelphia they can careless and I suffer and I can’t go out I refuse to I’m so sad and the fatigue and I don’t care about anything much anymore I’m so depressed over this that I don’t let people see me only my daughter and sisters and mom but I’m so frustrated with it all.

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@phillybomber - in Canada you need a referral from your general physician to see any specialist. If the physician does not see a reason for you to see one, you don’t get the referral. Physician, of course, is only following government health plan guidelines. In Ontario there is a shortage of physicians so if you are not happy with one, you cannot find another.

I live in Ontario. My husband and I moved a two hour drive out of the city and here there is an even bigger scarcity of physicians and specialists. We have been without a physician here since we moved seven months ago because no physicians are taking new patients. Because of the shortage, they already have more patients than they can handle. My physician in the city is still willing to see me - only till I find one here - but I don’t drive, which makes it very inconvenient. She can do phone consults for an existing problem, but for a new one, I would have to make an appointment.

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@phillybomber

I have been dealing with a distended abdomen and my left side has a big lump. It’s almost a year in 10 days I’ve been in & out of hospitals, my test come back that every result is good.
I’m 58 an I look like I’m having twins. Had gallbladder removed it was inflamed, I was told from a pic I sent to GI I have SIBO but I took meds and nothing is helping me I’m very upset my clothes i can’t wear an I don’t want anyone to see me and I haven’t eaten solid food since Nov.9th post op gallbladder removed I gained 8 pounds I’m carrying fluid but not 1 GI doc or Professors of GI knows what is wrong with me my life I don’t have one at all I been on all meds so many endoscopy, colonoscopy I’m so sad I can’t live like this anymore. No one knows how to help me and I haven’t been diagnosed in almost a year!

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Has anyone had any success with losing a distended and bloated belly after antibiotic, probiotic or other treatment for both hydrogen and methane SIBO?

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@lsdd13

Has anyone had any success with losing a distended and bloated belly after antibiotic, probiotic or other treatment for both hydrogen and methane SIBO?

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Oh yes! I had success ridding that problem by omitting apples, onions and garlic wh are gas producers, and taking a digestive enzyme called YUM for Bloating. You might want to run it by your dr though. Good luck!

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@lsdd13

Has anyone had any success with losing a distended and bloated belly after antibiotic, probiotic or other treatment for both hydrogen and methane SIBO?

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Thanks. I’ve already eliminated those foods and still gassy. I just started antibiotics for SIBO. Hoping that will help reduce the distention.

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@irr4et

Oh yes! I had success ridding that problem by omitting apples, onions and garlic wh are gas producers, and taking a digestive enzyme called YUM for Bloating. You might want to run it by your dr though. Good luck!

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I assume you meant HUM not Yum.
Have you tried Atrantil?

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@lsdd13

Has anyone had any success with losing a distended and bloated belly after antibiotic, probiotic or other treatment for both hydrogen and methane SIBO?

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lol yes I did mean HUM.
And yes I have taken Atrantil after struggling to pronounce it lol. It works on one particular type of bacteria. Can’t remember which one

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@lsdd13

Has anyone had any success with losing a distended and bloated belly after antibiotic, probiotic or other treatment for both hydrogen and methane SIBO?

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I have both methane and hydrogen, but my GI wants me to take Atrantil after the antibiotics.

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@lsdd13

Has anyone had any success with losing a distended and bloated belly after antibiotic, probiotic or other treatment for both hydrogen and methane SIBO?

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Iberogast is also helpful with bloating.

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