What's in a name?

Apr 9, 2021 | Greg Vanichkachorn | @drvan | Comments (4)

If there is one constant companion during the post COVID experience, it is unfortunately confusion. Confusion about symptoms. Confusion about treatment. And confusion about terms. This is especially true for the post COVID condition.

The National Institute of Health has called the condition of prolonged symptoms after a COVID-19 infection “Post-Acute Sequelae of Sars-COV2 infection,” or PASC. At the Mayo Clinic, we have been using the name “Post COVID Syndrome” (PCS) since the spring of 2020. So, which is the real name? The simple answer is both.

PASC can include a wide variety of symptoms and conditions after a COVID-19 infection. For example, lingering shortness of breath alone after COVID-19 would be part of the PASC condition. So too would-be on-going problems with smell.

In addition to these single symptoms, there are many patients that experience a group of symptoms together. These symptoms include fatigue, shortness of breath, troubles thinking, and neurological problems. This group of symptoms is a unique condition that Mayo Clinic recognizes as PCS.

One way to think of the difference is that all patients with PCS have PASC. But not every patient with PASC has PCS. Fortunately, we have care programs for both groups at Mayo Clinic.

Interested in more newsfeed posts like this? Go to the Post-COVID Recovery blog.

I had Covid in Feb. of this year, I have not only shortness of breath and fatigue but tremors and extreme pain. My legs and muscles are stiff and painful. I went from totally active to a wheel chair

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@user628267

I had Covid in Feb. of this year, I have not only shortness of breath and fatigue but tremors and extreme pain. My legs and muscles are stiff and painful. I went from totally active to a wheel chair

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Hello @user628267 and welcome to Mayo Clinic Connect. I can't imagine all you've had to deal with and overcome as a result of your post-covid journey. I'd like to invite you to join this discussion if interested.

– Any tips to help recovery for a COVID Long-Hauler?:
https://connect.mayoclinic.org/discussion/long-hauler/

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@amandajro

Hello @user628267 and welcome to Mayo Clinic Connect. I can't imagine all you've had to deal with and overcome as a result of your post-covid journey. I'd like to invite you to join this discussion if interested.

– Any tips to help recovery for a COVID Long-Hauler?:
https://connect.mayoclinic.org/discussion/long-hauler/

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do not give up. Keep searching for answers. One problem is there is no diagnosis for post covid, so Dr. really don't want to talk about long-haul covid. I was just at a Neurologist who said long-haul covid was a myth. I told him to check with Mayo and Stamford clinic and also the CDC , he then shut up, but I was very upset. We need the public to know about this and also the Dr. so they can figure out how to help us

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@user628267

do not give up. Keep searching for answers. One problem is there is no diagnosis for post covid, so Dr. really don't want to talk about long-haul covid. I was just at a Neurologist who said long-haul covid was a myth. I told him to check with Mayo and Stamford clinic and also the CDC , he then shut up, but I was very upset. We need the public to know about this and also the Dr. so they can figure out how to help us

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I'm glad that you found the Post-COVID Recovery programs offered at centers of excellence like Stanford and Mayo Clinic. Mayo Clinic runs several related programs, such as:
– Post-COVID-19 Care Clinic
– COVID Activity Rehabilitation Program
– Post-Acute Sequelae of COVID (PASC) Clinic
– Virtual 12-Week Treatment Program

See more here: https://connect.mayoclinic.org/blog/post-covid-recovery/tab/next-steps/

Post COVID is real.

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