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Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
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The Paris Olympics and Paralympics were held this summer. We had the privilege of seeing the world's best athletes perform at the highest level, which…
Using Artificial Intelligence to Enhance the Experience of Patients with Hypermobility The application of Artificial Intelligence (AI) in understanding individual patient experiences with chronic illness…
In our last research update we discussed results on our telemedicine treatment program, “EDS Living, for our next update, we will share the report…
For many patients living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), explaining your condition to friends, family, or a medical provider can seem…
As a follow up to our latest article on supplements, we will take some time to dig into the current knowledge on supplement use.…
We recently discussed the potential benefit of Kinesio Taping (KT) for hypermobility. In this post we go further to discuss some more basic principles of…
Now that we reviewed features of EDS/HSD related to supplements, it makes sense to ask the question: “will taking supplemental collagen help me?” To answer…
To help us answer the question whether supplements help, we first need to review some key features of EDS. Ehlers-Danlos syndromes (EDS) and…
Kinesiotaping (KT) is an intervention that is used by many people for lots of orthopaedic and neurological conditions, even athletes. It can also be…
It’s hard not to notice the buzz over the past few years around the growing use of artificial intelligence (AI). Many industries from finance…
The published literature on hypermobility disorders continues to grow. We previously shared insight on some of the recent books related to EDS/HSD. Two more to…
With their multisystem involvement, Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS) bring significant burdens and concerns on the patient when it comes…
Will I be able to dance? Flexibility is one of the greatest assets for dancers. When it comes to joint hypermobility spectrum disorders (HSD)…
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What is Aortic Dilation? In order to understand this, first, let’s talk about what is aorta. The aorta is the main artery that takes…
Patients can suffer debilitating setbacks from symptoms of EDS/HSD, so it’s important to take the opportunity to highlight patient success stories. We have started a…
There are numerous definitions of service dogs, but to many, they are cherished animal companions that serve as eyes, ears, hands, or legs…
Just as we have a very active role diagnosing and treating patients, our research agenda is equally important to improve our understanding of these disorders.…
What to Know about GERD and EDS Gastroesophageal reflux disease (GERD) is the recurrent flow of stomach acid back into the esophagus, the tube…
In a previous blog post, we highlighted four must-see documentaries on Ehlers-Danlos syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). In this post, we’ve compiled…
Becoming pregnant for the first time can bring an equal amount of joy and nervousness, especially for someone with hEDS/HSD. We have a story to…
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