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Welcome to the Ehlers-Danlos Syndromes (EDS) blog for people with EDS and Hypermobility Spectrum Disorders (HSD). Find information relevant to you written by the EDS multidisciplinary team from gastroenterology, neurology, cardiology dermatology, integrative medicine, PT/OT, pelvic floor therapy, and other specialties. Follow the blog and stay up-to-date as our experts post stories, clinical trials, resources, and more.
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Author: Sajan Gajarawala, Research Intern Surgery for patients with Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorder (HSD) can be a very complex process as we…
Authors: Dr. Jason Lam & Sharon Hennessey A question that often comes up during a medical visit for EDS/HSD, “is there anything that I need…
Author: Ozan Soyer, MD Living with EDS and other hypermobility spectrum disorders (HSD) can make exercise difficult, and some exercises can be better than others.…
Author: James Samaniego Educating others on EDS/HSD comes across many platforms. Recently, Dr. Knight was interviewed by the Rheumatology & Arthritis Learning Network to…
Author: Dacre Knight, MD, MS, FACP We have posted previously on transcutaneous electrical nerve stimulation (TENS) for hypermobility pain. In this post we will cover…
Author: Linda Bluestein, MD As a dance medicine physician, Ehlers-Danlos Syndromes (EDS) specialist, and host of the popular podcast Bendy Bodies, I’ve had the privilege…
Author: Rhiannon Thompson, Patient of the EDS Program I’ve shared stories and insights from my experiences and connected with many others in the EDS…
We have posted previously on various modalities that can help with hypermobility pain in Ehlers-Danlos syndromes and HSD, such as Kinesio Taping. In this post,…
The Paris Olympics and Paralympics were held this summer. We had the privilege of seeing the world's best athletes perform at the highest level, which…
Using Artificial Intelligence to Enhance the Experience of Patients with Hypermobility The application of Artificial Intelligence (AI) in understanding individual patient experiences with chronic illness…
In our last research update we discussed results on our telemedicine treatment program, “EDS Living, for our next update, we will share the report…
For many patients living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), explaining your condition to friends, family, or a medical provider can seem…
As a follow up to our latest article on supplements, we will take some time to dig into the current knowledge on supplement use.…
We recently discussed the potential benefit of Kinesio Taping (KT) for hypermobility. In this post we go further to discuss some more basic principles of…
Now that we reviewed features of EDS/HSD related to supplements, it makes sense to ask the question: “will taking supplemental collagen help me?” To answer…
To help us answer the question whether supplements help, we first need to review some key features of EDS. Ehlers-Danlos syndromes (EDS) and…
Kinesiotaping (KT) is an intervention that is used by many people for lots of orthopaedic and neurological conditions, even athletes. It can also be…
It’s hard not to notice the buzz over the past few years around the growing use of artificial intelligence (AI). Many industries from finance…
The published literature on hypermobility disorders continues to grow. We previously shared insight on some of the recent books related to EDS/HSD. Two more to…
With their multisystem involvement, Hypermobility Spectrum Disorders (HSD) and hypermobile Ehlers-Danlos Syndrome (hEDS) bring significant burdens and concerns on the patient when it comes…
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