Video Q&A about Breast Cancer Survivorship: Attaining Renewed Vitality

Wed, Oct 30, 2019
12:30pm to 2:15pm CT

Description

Dr. Dawn Mussallem, a diagnostic breast specialist, delivers a presentation for breast cancer survivors on achieving optimal well-being through diet, exercise, and stress management.

The video at the top of the page is the Q&A session. Dr. Mussallem takes your questions and moderates the panel of these specialists:

  • Kristin Lothman, MSW, LCSW, Mind-Body Counselor
  • Dr. Raul Rosario Concepcion, Physical Medicine and Cancer Prehabilitation
  • Debra Silverman, MS, RDN, LD/N, Integrative Cancer Nutritionist

Location

Online

I have invasive ductal cancer with 3/7 metastatic nodes with one eroding. The second lesion in the second breast is "neuroendocrine differentiation." What can I do to not have metastases elsewhere?

REPLY

@trixie1313
The neuroendocrine differentiation is unsettling to you, I imagine. If I had such a diagnosis, I think that I would push (hard) for genetic testing to see what I may have inherited that could be playing a part in all this — for example, certain syndromes like multiple endocrine neoplasia type 1 or 2, Von Hippel-Lindau disease, tuberous schlerosis, or neurofibromatosis. Ruling such things out might bring more confidence going forward with the treatment options offered.

Many of us risk mets at any time, which is frustrating and troubling to both patients and oncologists alike. I wish you blessings and the best outcome on this journey.

Liked by trixie1313

REPLY
@elizm

@trixie1313
The neuroendocrine differentiation is unsettling to you, I imagine. If I had such a diagnosis, I think that I would push (hard) for genetic testing to see what I may have inherited that could be playing a part in all this — for example, certain syndromes like multiple endocrine neoplasia type 1 or 2, Von Hippel-Lindau disease, tuberous schlerosis, or neurofibromatosis. Ruling such things out might bring more confidence going forward with the treatment options offered.

Many of us risk mets at any time, which is frustrating and troubling to both patients and oncologists alike. I wish you blessings and the best outcome on this journey.

Jump to this post

@elizm Thank you but that has already been done. NET ususally presents elsewhere, such as colon or liver, but in rare instances it presents in the breast. It is a wait and watch-type of diagnosis and once located elsewhere is treated with chemo used for lung cancers.

REPLY

Hi all, We're about to go live with Dr. Dawn Mussallem, a diagnostic breast specialist, on achieving optimal well-being through diet, exercise, and stress management, followed by a Q&A session for which Dr. Mussallem will be joined by these specialists:

– Kristin Lothman, MSW, LCSW, Mind-Body Counselor
– Dr. Raul Rosario Concepcion, Physical Medicine and Cancer Prehabilitation
– Debra Silverman, MS, RDN, LD/N, Integrative Cancer Nutritionist

Join us now by clicking VIEW or watch the archive any time.

REPLY

For Q & A session, would like to have her comment on Hormone Therapy for Breast Cancer and side effects and effect on quality of life.

REPLY
@roch

For Q & A session, would like to have her comment on Hormone Therapy for Breast Cancer and side effects and effect on quality of life.

Jump to this post

Great question that is often discussed in the group on Connect. I submitted your question. It sounds like Dr. Mussallem is going to talk about side effects of hormonal therapy and may answer some of your questions during the presentation. Let me know if you have any specific questions, @roch.

REPLY
@colleenyoung

Hi all, We're about to go live with Dr. Dawn Mussallem, a diagnostic breast specialist, on achieving optimal well-being through diet, exercise, and stress management, followed by a Q&A session for which Dr. Mussallem will be joined by these specialists:

– Kristin Lothman, MSW, LCSW, Mind-Body Counselor
– Dr. Raul Rosario Concepcion, Physical Medicine and Cancer Prehabilitation
– Debra Silverman, MS, RDN, LD/N, Integrative Cancer Nutritionist

Join us now by clicking VIEW or watch the archive any time.

Jump to this post

@colleenyoung is there anyway to get her handouts?

REPLY

Could I get this information you have passed out?

REPLY

Our video got blocked because Dr. Mussallem used a song from Trolls in her presentation. I'll upload it to YouTube and post it here. I will go live for the Q&A session and post the link here in a few minutes.

Liked by kathyomaha55

REPLY
@audreylaine

Our video got blocked because Dr. Mussallem used a song from Trolls in her presentation. I'll upload it to YouTube and post it here. I will go live for the Q&A session and post the link here in a few minutes.

Jump to this post

Thanks, @audreylaine

REPLY
@cinder

Could I get this information you have passed out?

Jump to this post

@cinder, if you are a Mayo Clinic patient, you can request the materials through the patient portal.

For people who do not have access to Mayo's patient portal, Dr. Mussallmen provided vetted websites. I will list them here in the comments after the presentation.

REPLY

Here is the presentation Dr. Mussallem gave before the Q&A:

.

Liked by cmstahr

REPLY
@colleenyoung

@cinder, if you are a Mayo Clinic patient, you can request the materials through the patient portal.

For people who do not have access to Mayo's patient portal, Dr. Mussallmen provided vetted websites. I will list them here in the comments after the presentation.

Jump to this post

@colleenyoung how do I request? I have been a patient at Mayo but breast cancer medical through Avera

REPLY
@gwinter

@colleenyoung how do I request? I have been a patient at Mayo but breast cancer medical through Avera

Jump to this post

If you are a Mayo Clinic patient, you can request the Mayo Clinic survivorship handouts that Dr. Mussallem mentioned in her presentation by sending her a message through Mayo's patient portal https://onlineservices.mayoclinic.org/content/staticpatient/showpage/patientonline

Additionally, here are the publicly accessible Survivorship Care Plans that she shared.
– Survivorship https://www.cancer.net/survivorship/follow-care-after-cancer-treatment-and-survivorship-care-plans (American Society of Clinical Oncology)
– Develop Your Survivorship Care Plan https://oncolife.oncolink.org/ (OncoLink)

REPLY
Please login or register to post a reply.