Mayo Clinic Connect
In this Video Q&A Dr. Curtiss Cook, Dr. Bernard Bendok, and Dr. Alyx Porter discuss pituitary gland tumors.
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Can non-functional pituitary adenomas become functional years later? How often should labs be checked? How often should you have an MRI for monitoring a small pituitary adenoma? Thank you
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It is very unlikely that non-functional pituitary adenomas would become functional years later. Regarding the frequency of labs and MRI, this depends on the scenario and the recommendations may change over time. This should be decided in consultation with an endocrinologist. Thanks for watching!
Thank you so much for your reply! That question has been on my mind for years and I would always forget to ask my neurologist. I appreciate you taking the time to answer my questions. This webinar has been very helpful and has put my mind at ease.
Liked by Colleen Young, Connect Director
has the research determined if there is a familial link with pituitary adenomas? I understand there are various kinds. My family has three generations of macro adenomas.
Hello @toffenbacher, I am intrigued by this topic as this seems to be a type of endocrine tumor – am I right in this assumption? This leads me to my next thought. I’ve had multiple neuroendocrine tumors (carcinoids) in the duodenal bulb (2003, 2005 and 2016). I’ve often wondered if the primary site of this tumor is really the duodenal bulb or elsewhere. Has there ever been any studies related to NETs and pituitary tumors? My endocrinologist has suggested the possibility of MEN1 which makes all of this sound familiar. I have several, but not all, of the symptoms. I also have hyperparathyroidism, osteopenia, and several other odd /rate disorders. Any comments on these thoughts?
Hi Teresa, I’m going to jump in and bring @jamimen1 into this conversation. Jami was diagnosed with MEN1 about a year ago and may be able to shed some light. You might also be interested in connecting with @jmbjar about hyperparathyroidism.
Did you ever investigate the possibility of MEN1?
@colleenyoung My endocrinologist and other doctors have mentioned it in passing, but I get the impression that I might not have all of the symptoms (or disorders needed) to look further into that. Thanks for letting me know about others with this situation, after the holidays I’ll check with them.
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