#MayoClinicNeuroChat about Brain Tumors

Wed, Sep 13, 2017
1:15pm to 1:45pm ET

Description

Dr. Alfredo Quiñones-Hinojosa and Dr. Hugo Guerrero Cazares answer questions about brain tumors.

Learn more about:

  • Symptoms
  • Causes
  • Research

Location

Online

@audreylaine

Due to the expected effects of Hurricane Irma, this Live Q&A has been rescheduled for Wednesday, Sept. 13 at 1:15 p.m. ET. We apologize for any inconvenience.

Jump to this post

Thank you for change of time. As above, not computer savvy and appreciate the communication direction in this important topic in a medical system that is rapidly changing and complex. Tried to get my former visit report with the neurologist, since my primary physician initiated the order, is not part of the neurologist medical network, I guess data can get lost, either to primary physician or patient in this HIPPA, territorial medical complex. JIM>>>>>>>>>

REPLY

Hi, I am new in this “forum”. I am a 42-year-old, mother of two teenagers. After suffering for many years from severe headaches, recently, I have been diagnosed with a benign meningioma in the brain, my concern is that my doctor has told me that there is nothing to do for the moment just monitoring every 1 to 2 years and be aware of symptoms or changes in my health. A benign meningioma can remain harmless or does a moment come where it reaches to its malignant stage?

Liked by EES1

REPLY

Thank you so much for hosting a Brain Tumor chat. It is a gift to learn more about brain tumors from Mayo Clinic experts as they answer questions and discuss in depth this complex medical issue. Here are my questions for the chat.
1. Are very small benign (less than 1 cm) Meningioma Tumor’s ever mis-diagnosed, or does the location (in the dura matter) of the brain always make it just a meningioma?
2. Is there any value in decoding the genes in benign brain tumors, like there is in malignant brain tumors?
3. Why would the proton beam not always be the better option for brain tumor treatment considering it’s less invasive than all the other choices?
Thanks again for organizing this Brain Tumor chat.

REPLY

Buen dia tengo necesito ayuda para mi mamá a quien le diagnosticaron un meningioma cerebral hace dos años,el cual causa dolor en el trigemino y le es imposible hablar y comer, fue tratada hacd dos años con una radiocirugia pero la masa no desaparecio. Quiero saber si existe otra alternativa para ella y en que pais y si me puden ayudar porque ella sufre mucho por ese meningioama

REPLY
@peque

Hi, I am new in this “forum”. I am a 42-year-old, mother of two teenagers. After suffering for many years from severe headaches, recently, I have been diagnosed with a benign meningioma in the brain, my concern is that my doctor has told me that there is nothing to do for the moment just monitoring every 1 to 2 years and be aware of symptoms or changes in my health. A benign meningioma can remain harmless or does a moment come where it reaches to its malignant stage?

Jump to this post

I have the same question. And How often should you do an MRI to see if there are changes?

REPLY

Hi @annia, we cannot provide treatment recommendations on Connect. If you want to seek medical advice or a consultation from a Mayo Clinic physician contact Mayo Clinic International at Intl.mcj@mayo.edu.

REPLY

Hi @annia , not looking for medical treatment iam simply a Biochem/Cellbio student in San Diego CA, that has followd Dr.Qs journey and interest in reaserch. I too like him iam looking to use my skill set to hopefully in the near future have an opportunity to work along side Dr.Q to find a cure for brain cancer . Thank you We are looking forward to listening to what both Doctors have to say on Brain Cancer. Respectfully , Jorge Eloy Barajas

REPLY
@peque

Hi, I am new in this “forum”. I am a 42-year-old, mother of two teenagers. After suffering for many years from severe headaches, recently, I have been diagnosed with a benign meningioma in the brain, my concern is that my doctor has told me that there is nothing to do for the moment just monitoring every 1 to 2 years and be aware of symptoms or changes in my health. A benign meningioma can remain harmless or does a moment come where it reaches to its malignant stage?

Jump to this post

First neurosurgeon said 3 months.  Second said a year.  It's all a guess!

REPLY
@ees1

Will this discussion be in a closed group on FB? My diagnosis is private. Only very few know. Thanks!

Jump to this post

If I reconnect here, will I be able to see complete video? I don’t want to go on FB because my medical stuff is private and don’t want FB “friends” to know what I’m doing. Thanks!!

REPLY
@ees1

Will this discussion be in a closed group on FB? My diagnosis is private. Only very few know. Thanks!

Jump to this post

Yes, @ees1. Simply return to this page at 1:15 p.m. Eastern time to watch the video live here on Connect. It will also be archived on this page to watch again later.

REPLY
@that_girl

I have a benign dermoid tumor located above the basilar artery in the Circle of Willis. It was discovered by accident January 2015 with a CAT scan to the brain after I had fainted and taken a fall. It was followed up with an MRI. I can find very little information on this kind of malady and was told by my family physician not to worry about it unless I developed symptoms. The radiologist report also advised to follow up with a neurologist if symptoms arose. The problem is I have no idea what symptoms would signal a problem. I am 61 years old and in good health, but had a second fainting episode and fall in January 2016. I was referred to a cardiologist who diagnosed it as orthostatic hypotension. What symptoms could arise that would be attributed to this tumor given its location as opposed to normal age-related problems and/or orthostatic hypotension? I have no idea what symptoms could arise or what would signal that I should be referred to a neurologist.

Jump to this post

Hi @that_girl,
It is difficult to “Watch and Wait”. But this doesn’t mean you and your health care team are doing nothing. You and your team are actively monitoring your health.

Here is a list of general symptoms to keep an eye on http://www.mayoclinic.org/diseases-conditions/brain-tumor/symptoms-causes/dxc-20117134 However symptoms will vary depending on the exact location of your tumor. Also, as you mentioned, you have other health issues to consider. Your doctor can tell you more about symptoms to watch for specific to your situation. Have you had a follow up appointment to discuss this specifically?

REPLY
@audreylaine

Due to the expected effects of Hurricane Irma, this Live Q&A has been rescheduled for Wednesday, Sept. 13 at 1:15 p.m. ET. We apologize for any inconvenience.

Jump to this post

Where do I find the webinar?

REPLY
@ees1

Will this discussion be in a closed group on FB? My diagnosis is private. Only very few know. Thanks!

Jump to this post

Great .. I thought it was at 1pm and couldn’t find it 😉

Thanks!

REPLY
@audreylaine

Due to the expected effects of Hurricane Irma, this Live Q&A has been rescheduled for Wednesday, Sept. 13 at 1:15 p.m. ET. We apologize for any inconvenience.

Jump to this post

@skateroo Can you see the video on this page now?

REPLY
@audreylaine

Due to the expected effects of Hurricane Irma, this Live Q&A has been rescheduled for Wednesday, Sept. 13 at 1:15 p.m. ET. We apologize for any inconvenience.

Jump to this post

Yes, I most certainly can .. it’s most interesting.
At this time my sister in law is terminally ill with a brain tumour.
Thanks .. Winn

REPLY
Please login or register to post a reply.