Video Q&A about Discussion on Family History

Fri, Nov 18, 2016
1:00pm to 2:00pm ET

Description

Discover how important your family health history is; it's important to have a conversation about your family's health history. What you learn about your relatives might save a life. Learn more from the Surgeon General about the family health history initiative, including a web based tool to organize your family history information.

Mayo Clinic certified genetic counselor Jessica Jackson gives a presentation with a virtual discussion following regarding the importance of family history.

Location

Online

I’m about to have genetic testing done for myoclonic dystonia and family members health history that could help with diagnosis have all died. Where/how could I legally obtain information on these family members which could help with my diagnosis?

Hello @cherriann, @upartist, @PatMattos, @cynaburst, @johnhans, @karenahmari, @sandytoes14, @matermiracle, @jenchaney727, @rmftucker, @crhp194, @nanke99, @heathert, @rareeby, @grandmajan, @lauriedr, @tlgreg60, @nhaegele, @liz223, @19lin, @dmkmom04,

I’d like to invite you to listen to Mayo Clinic certified genetic counselor Jessica Jackson, who will give a presentation with a virtual discussion to follow, regarding the importance of family history. This will take place tomorrow, Friday, November 18 at 11 am ET on Facebook Live. You can also participate by asking questions; the details are posted above.

You can sign up here: http://mayocl.in/2eLMqAG
By signing up you will receive a friendly email reminder a day before and one hour before the event.

You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
Please let me know if you have any questions.

@cbuss

I’m about to have genetic testing done for myoclonic dystonia and family members health history that could help with diagnosis have all died. Where/how could I legally obtain information on these family members which could help with my diagnosis?

Jump to this post

Welcome to Connect, @cbuss; what a great question!
Although I’m not quite sure about where you would be able to obtain this information, I will post it on tomorrow’s Facebook Live event where Mayo Clinic certified genetic counselor Jessica Jackson will give a presentation with a virtual discussion to follow, regarding the importance of family history.

I would also encourage you to sign up for this event, which will take place on tomorrow, Nov.18 at 11am ET.
You can sign up here: http://mayocl.in/2eLMqAG
You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.

In the meantime, I would like you to meet @Kaia, @netfun2011, @kevinkelley, @shenaaz, and @lo who have talked about various forms of dystonia in the past.

@cbuss, have you been diagnosed with myoclonic dystonia?

@kanaazpereira

Hello @cherriann, @upartist, @PatMattos, @cynaburst, @johnhans, @karenahmari, @sandytoes14, @matermiracle, @jenchaney727, @rmftucker, @crhp194, @nanke99, @heathert, @rareeby, @grandmajan, @lauriedr, @tlgreg60, @nhaegele, @liz223, @19lin, @dmkmom04,

I’d like to invite you to listen to Mayo Clinic certified genetic counselor Jessica Jackson, who will give a presentation with a virtual discussion to follow, regarding the importance of family history. This will take place tomorrow, Friday, November 18 at 11 am ET on Facebook Live. You can also participate by asking questions; the details are posted above.

You can sign up here: http://mayocl.in/2eLMqAG
By signing up you will receive a friendly email reminder a day before and one hour before the event.

You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
Please let me know if you have any questions.

Jump to this post

I will not be at a place where I can tune in to listen at time of broadcast. Will it be recorded so presentation could be watched at a later time?

Hi @cherriann,
Yes, it will be there on Facebook Live, as well as on Connect after the broadcast. I will be happy to send you the link, or you can watch it right here on this page.

Hi @kdubois
I’d like to invite you to listen to Mayo Clinic certified genetic counselor Jessica Jackson, who will give a presentation with a virtual discussion to follow, regarding the importance of family history. This will take place today, Friday, November 18 at 11 am ET on Facebook Live. You can also participate by asking questions; the details are posted above.

You can sign up here: http://mayocl.in/2eLMqAG
By signing up you will receive a friendly email reminder one hour before the event.

You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
Please let me know if you have any questions.

Hi @lisafl,
I’d like to invite you to listen to Mayo Clinic certified genetic counselor Jessica Jackson, who will give a presentation with a virtual discussion to follow, regarding the importance of family history. This will take place today, Friday, November 18 at 11 am ET on Facebook Live. You can also participate by asking questions; the details are posted above.

You can sign up here: http://mayocl.in/2eLMqAG
By signing up you will receive a friendly email reminder one hour before the event.

You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
Please let me know if you have any questions.

Hi @fernandavidigal, @jennsprung
I’d like to invite you to listen to Mayo Clinic certified genetic counselor Jessica Jackson, who will give a presentation with a virtual discussion to follow, regarding the importance of family history. This will take place today, Friday, November 18 at 11 am ET on Facebook Live. You can also participate by asking questions; the details are posted above.

You can sign up here: http://mayocl.in/2eLMqAG
By signing up you will receive a friendly email reminder one hour before the event.

You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
Please let me know if you have any questions.

@kanaazpereira

Hi @kdubois
I’d like to invite you to listen to Mayo Clinic certified genetic counselor Jessica Jackson, who will give a presentation with a virtual discussion to follow, regarding the importance of family history. This will take place today, Friday, November 18 at 11 am ET on Facebook Live. You can also participate by asking questions; the details are posted above.

You can sign up here: http://mayocl.in/2eLMqAG
By signing up you will receive a friendly email reminder one hour before the event.

You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
Please let me know if you have any questions.

Jump to this post

Registered… cannot wait.

@cbuss

I’m about to have genetic testing done for myoclonic dystonia and family members health history that could help with diagnosis have all died. Where/how could I legally obtain information on these family members which could help with my diagnosis?

Jump to this post

Hello @cbuss,

As you will hear, Mayo Clinic certified genetic counselor Jessica Jackson addressed your question on this Facebook Live broadcast. You can listen in detail, here: http://mayocl.in/2g2KzDs

Please let us know if you have any other questions; we’re listening.

@kanaazpereira

Hi @cherriann,
Yes, it will be there on Facebook Live, as well as on Connect after the broadcast. I will be happy to send you the link, or you can watch it right here on this page.

Jump to this post

Thanks so much for info. I was able to it watch on Connect this evening!

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