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547 total results
Discussions (52)
NET in body of pancreas: What are my treatment options?
NET in body of pancreas: What are my ... I have two tumors in body of pancreas ... was biopsies and apparently it’s a NET ... but one of the samples they found Neuroendocrine ... tumor cells.
Last active: Jun 16, 2024
Diagnosis Frustrated: How you were diagnosed with NETs?
Frustrated: How you were diagnosed with NETs ... endoscopy and they cannot find the tumor ... syndrome, stomach lining covered with neuroendocrine ... cells, etc) Until they can ‘find’ a tumor ... My GI doc says he knows I have nets
Last active: Apr 4 12:28pm
New to the group and cancer journey: Liver NETs
the group and cancer journey: Liver NETs ... was recently diagnosed with stage 4 neuroendocrine ... tumors on my liver.I went to the Dr ... hoping this slows the growth of the tumors.I
Last active: May 10 9:47am
I recently had surgery to remove NET in small intestine
I recently had surgery to remove NET ... They removed all of the tumor. ... --Well-differentiated neuroendocrine ... tumor, grade 2.Tumor is 1.8 cm in greatest
Last active: May 12, 2025
Neuroendocrine tumor in small bowel with lymph nodes involved
Neuroendocrine tumor in small bowel ... I was diagnosed with NETs of small bowel ... small bowel resection to remove the tumor
Last active: Jun 5, 2023
Recurrence of Neuroendocrine Tumor
Recurrence of Neuroendocrine Tumor ... Hi anyone with NETS recurrence? ... surgery in January 2024 to remove a tumor ... done with gallium 68 to trace any Nets ... Does. anyone know of a NETs specialist
Last active: 6 days ago
Anyone have Prophylactic Cranial Irradiation (PCI) for SCLC NETs?
Cranial Irradiation (PCI) for SCLC NETs ... Tumour in neck lymph node with histology ... type Neuroendocrine with suspected ... primary SCLC based on pathology of neck tumour.Had
Last active: Apr 15, 2025
Reccurrenct NETs and side effects of cap/tem
Reccurrenct NETs and side effects of ... I have reoccurrence of two tumors, one ... practitioner said it might be caused by the tumor ... guard/indigestion while on Him or from neuroendocrine ... tumor?
Last active: Jan 25 8:22am
Anyone with lung NETs experienced significant weight loss?
Anyone with lung NETs experienced significant ... Has anyone with a lung neuroendocrine ... tumor experienced significant weight ... diagnosis of a low-grade 1.3 mm carcinoid tumor
Last active: Jun 8 11:18am
Diagnosed with NET si-NET Stage 1 Grade 1
Diagnosed with NET si-NET Stage 1 Grade ... No other tumors found only 2 little ... pathology came back it said I had Grade 1 Neuroendocrine ... A lot of people who have Neuroendocrine ... It’s strange but I know I had this Neuroendocrine
Last active: Jun 23 8:01pm
I recently learned of histotripsy treatment for metastatic NETs
histotripsy treatment for metastatic NETs ... info on optimum size and number of tumors ... Histotripsy+treatmen+effective+for+neuroendocrine ... Histotripsy+treatmen+effective+for+neuroendocrine
Last active: Dec 31, 2024
Tomorrow is Surgery Day: NETs in pancreas tail
Tomorrow is Surgery Day: NETs in pancreas ... a surprise CT Scan revealed a 2CM Neuroendocrine ... Tumor on the tail of my pancreas in
Last active: Jul 7, 2023
4 treatment options from my doctor, which one should I start with?
mass in 2019 found to be a thymic neuroendocrine ... tumor (atypical carcinoid, 10 x 10 ... with metastatic, well-differentiated neuroendocrine ... tumor (WHO grade 2). ... Unfortunately, I was told that with thymic NETs
Last active: Mar 28 5:45pm
Small bowel NET and colon cancer
Small bowel NET and colon cancer ... A Neuroendocrine tumor was found in ... colon, we would not know about the NET
Last active: Mar 19, 2024
Investigations for pancreatic lesions, NETs? Confused and concerned
Investigations for pancreatic lesions, NETs ... suspicious for solid neoplasm, potential neuroendocrine ... tumor, atypical morphology for adenocarcinoma
Last active: Nov 21, 2022
2nd 3 month follow up
well differentiated, grade 2 stage 4 NET ... Amr Mohamed, head of the neuroendocrine ... tumor program at UH Seidman Cancer. ... He stated that since her pancreatic tumors
Last active: Oct 5, 2025
NET found by colonoscopy. What to expect and how should I approach
NET found by colonoscopy. ... Colonic mucosa with well-differentiated neuroendocrine ... tumor. ... a few videos to get some ideas on NET ... NET specialist. how to find them?
Last active: Jun 26, 2023
Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF
Neuroendocrine Pancreatic Tumors with ... Tumors covering pancreas and liver. ... Not normal in NETS. "One in a million ... and pass up trying to stave off the tumors
Last active: Apr 14 7:41pm
Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide
Stage 4 grade2 Pancreatic Neuroendocrine ... February 2025 by liver lesion biopsy with neuroendocrine ... confirmed pancreas as primary with tumor ... oncologist 4 1/2 hours away who has Net ... so I was hopeful for stability of tumors
Last active: Sep 16, 2025
Has anyone had experience with a Liver Transplant that has NET cancer?
experience with a Liver Transplant that has NET ... experience with a Liver Transplant that has Neuroendocrine ... NET? ... only in the liver, with about 10-12 tumors ... My question(s) is if anyone with NET
Support Group: Transplants
Last active: Feb 28, 2025