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26 total results
Comments (24)
My husband gets the sandostatin shot every 28 days and is also taking xermelo three times...
https://connect.mayoclinic.org/comment/1197248/
shot every 28 days and is also taking xermelo ... Xermelo has definitely helped for the
He tried everything. Xermelo is the only medicine that worked.
https://connect.mayoclinic.org/comment/1200692/
Xermelo is the only medicine that worked
Hello @fim and welcome to the NETs support group on Mayo Clinic Connect. I see that...
https://connect.mayoclinic.org/comment/1507523/
a similar diagnosis and have taken Xermelo ... link to many of the posts mentioning Xermelo ... search=Xermelo
As you are looking
My husband has NET's and his oncologist put him on Xermelo. The med definitely helped with...
https://connect.mayoclinic.org/comment/948443/
#39;s and his oncologist put him on Xermelo
Is anyone on the xermelo 250 mg tablets daily and how much is it helping and...
https://connect.mayoclinic.org/comment/1355123/
Is anyone on the xermelo 250 mg tablets
I too have a lot of itching and as weird as it sounds my ears itch...
https://connect.mayoclinic.org/comment/1386144/
The only new medication for me is Xermelo
Thank you for your recommendation. Duriing the last 10yrs dealing with NET diarrhea, I have tried...
https://connect.mayoclinic.org/comment/948668/
I believe Xermelo has been prescribed
@fim I have a pancreatic neuroendocrine tumor with metastasis to the liver and bones. I do...
https://connect.mayoclinic.org/comment/1507936/
get lanreotide shots nor do I take Xermelo
My experience is that it’s hard to say if my diarrhea is from the cancer, the...
https://connect.mayoclinic.org/comment/1219013/
Creon and Xermelo are two meds besides
Hi Lenora, I am the leader of The Wisconsin Neuroendocrine Cancer Connection, a group of 163...
https://connect.mayoclinic.org/comment/668825/
also on Everolimus daily (a pill) and Xermelo ... growth of the liver tumors and the Xermelo
Hello @hallinvestmentgroup and welcome to the NETs support group on Mayo Connect. I appreciate you sharing...
https://connect.mayoclinic.org/comment/1028222/
I'm glad to hear that the Xermelo
Absolutely open to sharing. I was diagnosed originally in 2020 after a 30 day bout with...
https://connect.mayoclinic.org/comment/1292381/
on Lanreotide every three weeks and Xermelo ... baddddddddddd) and a little diarrhea but the Xermelo
Mary, Thank you so much for reaching out and providing this info. I just emailed Dave...
https://connect.mayoclinic.org/comment/184523/
I just looked up Xermelo and they even
Ive been on Lanreotide every 3 weeks since last year and still struggle with diarrhea and...
https://connect.mayoclinic.org/comment/1289328/
I just started taking Xermelo (telotristat
@hopeful33250 @ahtaylor @joannem @tomewilson It’s nice to meet everyone. I will be happy to connect with...
https://connect.mayoclinic.org/comment/134544/
pressure medications, Creon, Bentyl, and Xermelo
Hi, I have had a resection in my small bowel 12/24. It took about a year...
https://connect.mayoclinic.org/comment/1271695/
Also on Creon and Xermelo to help with
Hello, @andre1221 and @amandafl, I am pleased to join Colleen, @colleenyoung, in welcoming you to Mayo...
https://connect.mayoclinic.org/comment/134549/
am currently on Lanreotide, Creon, Xermelo
Hi I was sick for a long time until we accidentally discovered it was and net...
https://connect.mayoclinic.org/comment/1234800/
He immediately placed me on Creon, Xermelo
My name is André. My caretaker and best friend, Stephanie (wifey) live near the Sanford/Orlando Airport....
https://connect.mayoclinic.org/comment/134542/
am currently on Lanreotide, Creon, Xermelo
I was diagnosed in Jan 2019 with a well-differentiated, functioning Net with a Ki-67 index of...
https://connect.mayoclinic.org/comment/1028134/
seems most appropriate
I also take Xermelo
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