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21 total results
Comments (18)
Hello @torontoguy, I'm not sure if you saw my response to your first discussion here -...
https://connect.mayoclinic.org/comment/1311607/
I did a search of Connect for "Pachymeningitis ... treatment" and see that there ... search=Pachymeningitis%20+treatment. ... Have you started any treatments or have ... the doctors suggested any treatments
Hi @torontoguy. Dealing with Pachymeningitis and vision issues in both eyes in a family member. It’s...
https://connect.mayoclinic.org/comment/1286360/
Dealing with Pachymeningitis and vision ... Any success with your treatment or symptom
Welcome @zacworld, The link works for me so I'm not sure what the problem is. The...
https://connect.mayoclinic.org/comment/1110491/
--Rituximab Treatment for Idiopathic ... Hypertrophic Pachymeningitis
https
Hello, I was diagnosed with pachymeningitis about 4 years ago after having an MRI. I'm really...
https://connect.mayoclinic.org/comment/1110480/
Hello,
I was diagnosed with pachymeningitis ... share what they have tried and any treatments ... anyone has any info on this regarding treatments ... knows a neurologist who specializes in pachymeningitis
Yes, Was diagnosed first of April. Had been suffering with headaches that became more and more...
https://connect.mayoclinic.org/comment/76977/
concurs with the original diagnosis of Pachymeningitis ... diet, supplements, etc might help in treatment
It is a lonely journey. I too have come under suspicion after 3 MRI's for Pachymeningitis....
https://connect.mayoclinic.org/comment/76945/
under suspicion after 3 MRI's for Pachymeningitis ... truly understand the diagnosis and treatment ... what I've learned so far is even the treatment ... scary not knowing whether to do the treatment ... I'm researching Pachymeningitis and
Hello, After I had the first Pfizer booster in Dec 2021, by Jan 2022 they discovered...
https://connect.mayoclinic.org/comment/768267/
Jan 2022 they discovered that I had Pachymeningitis ... Also since I had the hematoma, Pachymeningitis ... I am starting IVIG treatments due to
Have you tried IVIG treatments? Supposedly it works wonders. I’m starting it in November. I have...
https://connect.mayoclinic.org/comment/765780/
Have you tried IVIG treatments? ... diagnosed with Sjogren’s Syndrome and Pachymeningitis ... Rheumatologist recommended the IVIG infusion treatments ... It is also a treatment for other autoimmune
Hello. Like your husband, I too have had hearing loss and vertigo issues. Five months ago...
https://connect.mayoclinic.org/comment/1110494/
symptoms started around the same time my pachymeningitis ... you and your husband able to find treatment
Hello - I have just been diagnosed with pachymeningitis after craniotomy 3 weeks ago. Currently taking...
https://connect.mayoclinic.org/comment/76961/
- I have just been diagnosed with pachymeningitis ... Does anyone have any updates on other treatments
Hello @torontoguy, Welcome to Connect. We modified your discussion title a little to hopefully bring in...
https://connect.mayoclinic.org/comment/1171012/
.
-- Pachymeningitis: Anyone else? ... papers that might be helpful.
-- Treatment ... .0000000000206689
-- Characteristics, outcome and treatments ... : Causes, Symptoms, and Treatment: ... https://www.verywellhealth.com/pachymeningitis-definition-causes-symptoms-and-treatment
Hello, I also have a rare disorder - Pachymeningitis, which is basically inflammation comprised of Over...
https://connect.mayoclinic.org/comment/613653/
Hello, I also have a rare disorder - Pachymeningitis ... craniotomy to biopsy the tissue and found ‘Pachymeningitis ... I’ve had 4 treatments so far since 2017
Hi @helena49 I live in San Francisco Bay Area and was also diagnosed with ideopathic Pachymeningitis...
https://connect.mayoclinic.org/comment/76992/
was also diagnosed with ideopathic Pachymeningitis ... x3 and so far that works but I need treatment
Hi..I'm 71, I live in VA and was diagnosed with Pachymeningitis in August 2018, at Wake...
https://connect.mayoclinic.org/comment/76989/
live in VA and was diagnosed with Pachymeningitis ... Treatment with steroids almost killed
Hello, I'm new to this group. I was diagnosed with Pachymeningitis in November 2016 via a...
https://connect.mayoclinic.org/comment/76955/
I was diagnosed with Pachymeningitis ... know everyone else's experience and treatment
Hello @dwallech, Welcome to Connect. It must be really difficult when you are both the primary...
https://connect.mayoclinic.org/comment/777140/
husband has a rare condition like pachymeningitis ... earlier in the discussion:
-- Rituximab Treatment ... for Idiopathic Hypertrophic Pachymeningitis
A number of you have posted about your experiences with pachymeningitis, and it would be great...
https://connect.mayoclinic.org/comment/76986/
posted about your experiences with pachymeningitis ... improvements you saw with the steroid treatment
Hi @tracyb My doctors are at UCSF San Francisco CA. I think I am the most...
https://connect.mayoclinic.org/comment/76960/
most recent and probably only case of Pachymeningitis ... meningioma and I had two gamma knife treatments ... that is when I was diagnosed with Pachymeningitis