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21 total results
Comments (18)
Hello @torontoguy, I'm not sure if you saw my response to your first discussion here -...
I did a search of Connect for "Pachymeningitis ... treatment" and see that there ... search=Pachymeningitis%20+treatment. ... Have you started any treatments or have ... the doctors suggested any treatments
Support Group: Autoimmune Diseases
Posted: May 24 7:07am
Hello, I was diagnosed with pachymeningitis about 4 years ago after having an MRI. I'm really...
Hello, I was diagnosed with pachymeningitis ... share what they have tried and any treatments ... anyone has any info on this regarding treatments ... knows a neurologist who specializes in pachymeningitis
Support Group: Brain & Nervous System
Posted: Jul 23, 2024
Yes, Was diagnosed first of April. Had been suffering with headaches that became more and more...
concurs with the original diagnosis of Pachymeningitis ... diet, supplements, etc might help in treatment
Support Group: Brain & Nervous System
Posted: Jul 5, 2018
It is a lonely journey. I too have come under suspicion after 3 MRI's for Pachymeningitis....
under suspicion after 3 MRI's for Pachymeningitis ... truly understand the diagnosis and treatment ... what I've learned so far is even the treatment ... scary not knowing whether to do the treatment ... I'm researching Pachymeningitis and
Support Group: Brain & Nervous System
Posted: Aug 1, 2015
Hello, After I had the first Pfizer booster in Dec 2021, by Jan 2022 they discovered...
Jan 2022 they discovered that I had Pachymeningitis ... Also since I had the hematoma, Pachymeningitis ... I am starting IVIG treatments due to
Support Group: Brain & Nervous System
Posted: Nov 1, 2022
Have you tried IVIG treatments? Supposedly it works wonders. I’m starting it in November. I have...
Have you tried IVIG treatments? ... diagnosed with Sjogren’s Syndrome and Pachymeningitis ... Rheumatologist recommended the IVIG infusion treatments ... It is also a treatment for other autoimmune
Support Group: Brain & Nervous System
Posted: Oct 26, 2022
Hello. Like your husband, I too have had hearing loss and vertigo issues. Five months ago...
symptoms started around the same time my pachymeningitis ... you and your husband able to find treatment
Support Group: Brain & Nervous System
Posted: Jul 23, 2024
Hello - I have just been diagnosed with pachymeningitis after craniotomy 3 weeks ago. Currently taking...
- I have just been diagnosed with pachymeningitis ... Does anyone have any updates on other treatments
Support Group: Brain & Nervous System
Posted: Jun 19, 2017
Hello @torontoguy, Welcome to Connect. We modified your discussion title a little to hopefully bring in...
. -- Pachymeningitis: Anyone else? ... papers that might be helpful. -- Treatment ... .0000000000206689 -- Characteristics, outcome and treatments ... : Causes, Symptoms, and Treatment: ... https://www.verywellhealth.com/pachymeningitis-definition-causes-symptoms-and-treatment
Support Group: Autoimmune Diseases
Posted: Nov 10, 2024
Hello, I also have a rare disorder - Pachymeningitis, which is basically inflammation comprised of Over...
Hello, I also have a rare disorder - Pachymeningitis ... craniotomy to biopsy the tissue and found ‘Pachymeningitis ... I’ve had 4 treatments so far since 2017
Support Group: Lung Health
Posted: Jul 3, 2021
Hi @helena49 I live in San Francisco Bay Area and was also diagnosed with ideopathic Pachymeningitis...
was also diagnosed with ideopathic Pachymeningitis ... x3 and so far that works but I need treatment
Support Group: Brain & Nervous System
Posted: Jul 17, 2020
Hi..I'm 71, I live in VA and was diagnosed with Pachymeningitis in August 2018, at Wake...
live in VA and was diagnosed with Pachymeningitis ... Treatment with steroids almost killed
Support Group: Brain & Nervous System
Posted: Jul 17, 2020
Hello @dwallech, Welcome to Connect. It must be really difficult when you are both the primary...
husband has a rare condition like pachymeningitis ... earlier in the discussion: -- Rituximab Treatment ... for Idiopathic Hypertrophic Pachymeningitis
Support Group: Brain & Nervous System
Posted: Nov 25, 2022
A number of you have posted about your experiences with pachymeningitis, and it would be great...
posted about your experiences with pachymeningitis ... improvements you saw with the steroid treatment
Support Group: Brain & Nervous System
Posted: Apr 15, 2019
Hi @tracyb My doctors are at UCSF San Francisco CA. I think I am the most...
most recent and probably only case of Pachymeningitis ... meningioma and I had two gamma knife treatments ... that is when I was diagnosed with Pachymeningitis
Support Group: Brain & Nervous System
Posted: Mar 27, 2017