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10 total results

Comments (9)

Hi @ceefer, I don't have a PNET or the burning with my neuropathy but do have...

https://connect.mayoclinic.org/comment/1600730/

Hi @ceefer, I don't have a PNET ... or the burning with my neuropathy but ... There are members who have mentioned PNET ... and neuropathy if you want to scan ... search=PNET++and+neuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 18 8:16am

Hi first time posting. I have diabetes and a PNET, currently not in any treatment for...

https://connect.mayoclinic.org/comment/1600570/

I have diabetes and a PNET, currently ... I e also been diagnosed with neuropathy

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jun 18 6:10am

https://connect.mayoclinic.org/comment/1051227/

I don’t have neuropathy. ... mittens and ice booties to try to avoid neuropathy ... I also have a PNET.

Discussion: Diagnosed with invasive ductal Carcinoma 2.2mm. Er/HER2 +3 positive

Support Group: Breast Cancer

Posted: Apr 15, 2024

Hi @jingjingjing and welcome to Mayo Connect. I have a pnet that spread to my liver....

https://connect.mayoclinic.org/comment/1360006/

I have a pnet that spread to my liver ... I have neuropathy but nothing like you

Discussion: NET and neuropathy

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30, 2025

@tomrennie Can I ask you when you were diagnosed, what grade and where NET originated (...

https://connect.mayoclinic.org/comment/1530693/

just re-read above and you stated pNET ... diarrhea, 8-9 lbs weight loss in 6 days, neuropathy

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 11:35am

@bnjncrew I was diagnosed with pNET with metastasis to the liver on 8/22/2022. I have completed...

https://connect.mayoclinic.org/comment/883888/

bnjncrew I was diagnosed with pNET ... Around my 7th cycle, I started getting neuropathy

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Hi, I am a caregiver for someone with grade 3 well- differentiated pNET metastatic to liver...

https://connect.mayoclinic.org/comment/1530655/

with grade 3 well- differentiated pNET ... a 13th round of just Fluorouracil (neuropathy

Discussion: Folfox side effects very difficult, ideas to manage?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 11:02am

@djchambers Can anyone provide side effects they experienced from CAPTEM treatment? I was told complete hair...

https://connect.mayoclinic.org/comment/1511203/

have a family member with Grade 3 pNET ... Completed 12 rounds of Folfox (some neuropathy

Discussion: NETs growing despite 3 months of capecitabine and temozolomide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 11:37am

https://connect.mayoclinic.org/comment/1051219/

I don’t have neuropathy. ... mittens and ice booties to try to avoid neuropathy ... I also have a PNET.

Discussion: Diagnosed with invasive ductal Carcinoma 2.2mm. Er/HER2 +3 positive

Support Group: Breast Cancer

Posted: Apr 15, 2024