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80 total results
Comments (71)
Hello @twofeathers8613 and @ebm, I'd like to welcome you to Connect, and thank you so much...
https://connect.mayoclinic.org/comment/88371/
Syndrome, and may be able to offer ... syndrome: – https://www.mayoclinic.org ... /diseases-conditions/marfan-syndrome ... https://connect.mayoclinic.org/webinar/marfan-syndrome-challenges-in-diagnosing-and-treating ... / Since Marfan syndrome is a connective
Discussion: Anyone with Marfans Syndrome?
Support Group: Heart & Blood Health
Posted: Feb 17, 2018
Dr. Deyle, My daughter has dislocation of lenses and we have gone through testing including genetic...
https://connect.mayoclinic.org/comment/381502/
testing to see if it is related to Marfan ... Syndrome. ... can you confirm this is related to Marfan ... syndrome, or related to another syndrome
Event: Video Q&A about Marfan Syndrome: Challenges in Diagnosing and Treating
Posted: Oct 22, 2015
Our 31-year-old son was recently diagnosed with Callogeneous Gastritis, and also with a thickened and bowed...
https://connect.mayoclinic.org/comment/682563/
wants him to have genetic testing for Marfan ... syndrome, as well. ... and whoever would do the testing for Marfan ... syndrome. ... syndrome, or if any of you are on
Discussion: Collagenous Gastritis
Support Group: Digestive Health
Posted: Feb 19, 2022
Hello @anshi789, Welcome to Connect. You certainly have been through at your young age and I...
https://connect.mayoclinic.org/comment/1132111/
mentioned that you may possibly have Marfan ... Syndrome. ... Syndrome - https://connect.mayoclinic.org ... search=Marfan%20syndrome. ... Syndrome or has your doctor suggested
Discussion: High arch, scoliosis, hypermobility, possible Marfan syndrome.
Support Group: Bones, Joints & Muscles
Posted: Aug 28, 2024
Hi @dusti - I imagine how frustrating it has been, and I hope that you're able...
https://connect.mayoclinic.org/comment/88368/
find support through Connect and The Marfan ... www.mayoclinic.org/diseases-conditions/marfan-syndrome ... engaging way for people living with Marfan ... syndrome, or who care for those with ... Marfan syndrome, to find each other
Discussion: Anyone with Marfans Syndrome?
Support Group: Heart & Blood Health
Posted: Mar 15, 2016
Well, my 2 (now adult) children and I have Ehlers-Danlos Syndrome (EDS). • My youngest has...
https://connect.mayoclinic.org/comment/114598/
Syndrome ... • What we know about EDS/Marfan Syndrome ... • EDS/Marfan Syndrome are "Connective ... Syndrome, Michael Phelps has Marfan ... Of Mice & Men' has Marfan Syndrome)
Discussion: Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)
Support Group: Autoimmune Diseases
Posted: Dec 28, 2016
Yes, I am still very anxious. I am concerned that Dr may be looking to 5.5...
https://connect.mayoclinic.org/comment/1221131/
hoping he will be diagnosed with Marfan ... syndrome, so his surgery can be expedited
Discussion: Aortic Root Aneurysm treatment/ advice
Support Group: Aortic Aneurysms
Posted: Jan 25 8:40am
Hi @lazyironman Rosemary has provided a great link to learn more from others about visiting Mayo...
https://connect.mayoclinic.org/comment/173257/
Clinic experts Video Q&A about Marfan ... Syndrome: Challenges in Diagnosing ... https://connect.mayoclinic.org/webinar/marfan-syndrome-challenges-in-diagnosing-and-treating
Discussion: First appointment at Mayo with Medical Genetics
Support Group: Visiting Mayo Clinic
Posted: Nov 1, 2017