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611 total results
Comments (591)
Welcome @cargriff4, I think members here on Connect will agree with you that your journey with...
agree with you that your journey with GCA ... treatments that might be helpful. ... search link that lists the different treatment ... search=GCA%20treatments Do you mind ... sharing what treatment you are currently
Discussion: Help with GCA
Support Group: Autoimmune Diseases
Posted: 2 days ago
Just got out of 2 weeks in Mayo due to autoimmune FIRESTORM!! Ive had Lupus for...
new one that git me to the ER was GCA ... Ultrasound or other tests did not show GCA ... As I was responding to treatment Dr.
Posted: May 20 9:00am
Good question!! Personally, I do monthly Actemra infusions and I have been on Actemra since 2019....
have a sustained remission of PMR/GCA ... Life_after_tocilizumab_given_for_giant_cell_arteritis_a_patient_survey_and_argument_for_re-treatment
Discussion: Kevzara Tapering?
Posted: May 31 1:05pm
@dadcue Mike, I read your posts often and appreciate your insights and experience. I am overwhelmed...
Then GCA came along. ... The different treatment approaches and ... take indicates to me that PMR and GCA
Posted: 5 days ago
@sassysaveur I am sorry you are going thru the "not convinced cycle". I on the other...
I on the other hand did not have GCA ... one leading teaching hospital to Dx GCA ... another problem which will require treatment ... me I have no eye damage or signs of GCA
Posted: May 25 12:34pm
@firestorm7 Can I ask where you live? I ask because I myself have been through that...
new more serious autoimmune disease; GCA ... been home, still recuperating but treatment ... over the world to get answers & treatment
Support Group: Infectious Diseases
Posted: 3 days ago
I’m sending you a big hug. This autoimmune stuff is so hard, especially when you’re young....
Now I have GCA/PMR, new autoimmune disease ... who diagnosed me with Lupus & treatment
Discussion: Autoimmune
Support Group: Autoimmune Diseases
Posted: Jun 1 9:27am
@momac59 Just got a call from my daughter in Chicago (I’m in AZ). She is 36...
amp; now this more serious intense GCA ... clinical trials & research better treatment
Discussion: Autoimmune
Support Group: Autoimmune Diseases
Posted: Jun 4 8:41am
@jfannarbor PMR is no different than other autoimmune disorders that don't have definitive diagnostic tests. There...
research about a biologic being used for GCA ... I didn't have GCA but was told ... patients are willing to try other treatment ... to do research in order to get new treatments
Posted: 4 days ago
@SusanEllen66 and it’s totally unrelated to the PMI and GCA? Seems so weird that you would...
s totally unrelated to the PMI and GCA ... weird that you would have Pam and GCA ... same time as the other symptoms and treatment
Discussion: Tender scalp ?
Posted: 5 days ago
@kjoed53 and all... Yes, absolutely true, especially with auto-immune diseases. They have stumped the medical field...
definitive diagnostic symptoms and better treatments ... Then. shortly, I was hit with GCA and ... which worked immediately to calm the GCA
Posted: Apr 14 12:47pm
@johnbishop Hi @momac59, I had PMR and GCA, undiagnosed for a year. With the GCA, three...
johnbishop Hi @momac59, I had PMR and GCA ... With the GCA, three incidents of visual ... artery biopsy and was positive for GCA ... then relapsed and did the prednisone treatment ... the bottom of this and get effective treatment
Posted: Apr 15 4:41pm