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611 total results
Comments (591)
Welcome @cargriff4, I think members here on Connect will agree with you that your journey with...
https://connect.mayoclinic.org/comment/1600095/
agree with you that your journey with GCA ... treatments that might be helpful. ... search link that lists the different treatment ... search=GCA%20treatments
Do you mind ... sharing what treatment you are currently
@lally I think she did that as a precaution. It seems like most GCA treatments are...
https://connect.mayoclinic.org/comment/1425738/
It seems like most GCA treatments are ... reading some of the posts is that GCA
Hello @amycmoore50nc, Welcome to Connect. I would definitely let your rheumatologist know about your recent symptoms....
https://connect.mayoclinic.org/comment/1109758/
related discussions on Actemra and other GCA ... treatments to learn what others have ... search=GCA%20treatments.
@sassysaveur, my symptoms progressed and when I began having scalp pain and headaches, as well as...
https://connect.mayoclinic.org/comment/1582846/
don’t remember whether I received a GCA ... hear that you are getting appropriate treatment
Just got out of 2 weeks in Mayo due to autoimmune FIRESTORM!! Ive had Lupus for...
https://connect.mayoclinic.org/comment/1578938/
new one that git me to the ER was GCA ... Ultrasound or other tests did not show GCA ... As I was responding to treatment Dr.
Good question!! Personally, I do monthly Actemra infusions and I have been on Actemra since 2019....
https://connect.mayoclinic.org/comment/1587649/
have a sustained remission of PMR/GCA ... Life_after_tocilizumab_given_for_giant_cell_arteritis_a_patient_survey_and_argument_for_re-treatment
@jabrown0407 Thanks for this useful response. I’m 6 weeks post-dx and on 15mg Prednisone per day....
https://connect.mayoclinic.org/comment/1593172/
UK treatment pathway (NICE) is 15mg ... Having GCA must be a real added challenge
@dadcue Mike, I read your posts often and appreciate your insights and experience. I am overwhelmed...
https://connect.mayoclinic.org/comment/1597620/
Then GCA came along. ... The different treatment approaches and ... take indicates to me that PMR and GCA
@sassysaveur I am sorry you are going thru the "not convinced cycle". I on the other...
https://connect.mayoclinic.org/comment/1583004/
I on the other hand did not have GCA ... one leading teaching hospital to Dx GCA ... another problem which will require treatment ... me I have no eye damage or signs of GCA
Thank you for the video. I have read alot about PMR and GCA. This video was...
https://connect.mayoclinic.org/comment/1593368/
I have read alot about PMR and GCA. ... doctors use this video as part of the treatment
@firestorm7 Can I ask where you live? I ask because I myself have been through that...
https://connect.mayoclinic.org/comment/1599409/
new more serious autoimmune disease; GCA ... been home, still recuperating but treatment ... over the world to get answers & treatment
@markennedy56 please include me as I have PmR GCA and about to start bone density treatment....
https://connect.mayoclinic.org/comment/1582308/
markennedy56 please include me as I have PmR GCA ... and about to start bone density treatment
I’m sending you a big hug. This autoimmune stuff is so hard, especially when you’re young....
https://connect.mayoclinic.org/comment/1588239/
Now I have GCA/PMR, new autoimmune disease ... who diagnosed me with Lupus & treatment
@momac59 Just got a call from my daughter in Chicago (I’m in AZ). She is 36...
https://connect.mayoclinic.org/comment/1590401/
amp; now this more serious intense GCA ... clinical trials & research better treatment
@jfannarbor PMR is no different than other autoimmune disorders that don't have definitive diagnostic tests. There...
https://connect.mayoclinic.org/comment/1598209/
research about a biologic being used for GCA ... I didn't have GCA but was told ... patients are willing to try other treatment ... to do research in order to get new treatments
@SusanEllen66 and it’s totally unrelated to the PMI and GCA? Seems so weird that you would...
https://connect.mayoclinic.org/comment/1597240/
s totally unrelated to the PMI and GCA ... weird that you would have Pam and GCA ... same time as the other symptoms and treatment
@jabrown0407 Hi. I just had my first infusion of Tyenne on march 17. For GCA vasculitis...
https://connect.mayoclinic.org/comment/1534507/
For GCA vasculitis in the aorta . ... Hopefully your treatment is progressing
@kjoed53 and all... Yes, absolutely true, especially with auto-immune diseases. They have stumped the medical field...
https://connect.mayoclinic.org/comment/1550444/
definitive diagnostic symptoms and better treatments ... Then. shortly, I was hit with GCA and ... which worked immediately to calm the GCA
@johnbishop Hi @momac59, I had PMR and GCA, undiagnosed for a year. With the GCA, three...
https://connect.mayoclinic.org/comment/1551406/
johnbishop
Hi @momac59, I had PMR and GCA ... With the GCA, three incidents of visual ... artery biopsy and was positive for GCA ... then relapsed and did the prednisone treatment ... the bottom of this and get effective treatment
@jabrown0407 saw Rheumatologist for 1st time yesterday after initial treatment started on Mar 13th. GCA confirmed,...
https://connect.mayoclinic.org/comment/1561477/
for 1st time yesterday after initial treatment ... GCA confirmed, will start Actemra following
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