To narrow your search, try adding quotation marks around phrases.
Search tips
- Search by keywords or complete phrases.
- To narrow your search, try adding quotation marks around phrases.
- Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
139 total results
Comments (136)
Hi @bunnykfl, I've had PMR twice and was able to taper off of prednisone both times...
https://connect.mayoclinic.org/comment/1125041/
twice and was able to taper off of prednisone ... don't have any experience with Actemra ... by members when searching for "Actemra ... and prednisone +remission" - https ... search=Actemra+and+prednisone+%2Bremission
I was diagnosed with PMR in Dec2020, tested negative for Covid, but then got sicker and...
https://connect.mayoclinic.org/comment/1366437/
I took prednisone for Covid an immediately ... I had to stay on prednisone, it was ... see rheumatologist again, he lowered prednisone ... , and 50% patients went into remussion ... I live in a country where Actemra is
The UK is a good case study for what happens when Actemra is stopped. In the...
https://connect.mayoclinic.org/comment/1376062/
Generally, the belief is if Prednisone ... matter how long a patient stays on prednisone ... is safer for me than long term Prednisone ... personal experience with long term Prednisone ... of patients not ‘enough to sustain remission
That is a good question! I think most rheumatologists are reluctant to start elderly people on...
https://connect.mayoclinic.org/comment/1378411/
It was prednisone by default because ... My treatment with Actemra has achieved ... remission of PMR and is also preventing ... pain while we wait for PMR to go into remission ... It can be a long wait for remission
I think Actemra controls the pain longer than prednisone. That probably explains why I can go...
https://connect.mayoclinic.org/comment/1382709/
I think Actemra controls the pain longer ... than prednisone. ... I do think the faster remission happens ... Prednisone might be better for fast ... remission but it isn’t sustained well
jeanrod825 My first round with Giant Cell Arteritis (GCA) lasted from 2018 to 2021. After a...
https://connect.mayoclinic.org/comment/1356958/
After a period of remission, I experienced ... I restarted prednisone in September ... In March 2025, I began monthly Actemra ... -style prednisone taper. ... while continuing Actemra, I don’t want
It was a long 12 year journey but now PMR is being treated without prednisone. I...
https://connect.mayoclinic.org/comment/1357186/
The option was Actemra (tocilizumab) ... used to prevent uveitis flares while Actemra ... Uveitis was soon in remission again ... I wanted to be off Prednisone so Actemra ... now been successfully treated with Actemra
Does everybody taking a biologic or DMARD get to 0mg prednisone? -------------------- No ... only about...
https://connect.mayoclinic.org/comment/1321737/
only about half of the patients on Actemra ... were able to get to 0 mg of prednisone ... able to achieve a "sustained remission ... " in 52 weeks compared to Prednisone ... for remission was much less and also
I was referred to an endocrinologist who took control of my Prednisone dose. The endocrinologist was...
https://connect.mayoclinic.org/comment/1341080/
Keep in mind that I was taking Actemra ... without Actemra. ... After Actemra was started, I tapered ... Uveitis went back into remission but ... When Actemra was restarted I tapered
It was the terminology used in the GiACTA study that led to the FDA approval of...
https://connect.mayoclinic.org/comment/1334569/
for GCA in 2017.
"Remission ... Sustained remission was defined as remission ... through Week 52 and adherence to the prednisone ... More importantly, I have been off Prednisone ... and I have mostly recovered from my Prednisone
3months prednisone taper post Large Vessel GCA/ PMR diagnosis Nov 2024 . ( no more Pred...
https://connect.mayoclinic.org/comment/1360974/
3months prednisone taper post Large ... Nov 24 Simultaneous commencement of Actemera ... Remission achieved within a month , ... Expect to cease Actemera Nov 2025 . ... ie 12 months Actemera treatment.
A slow taper isn't necessary for all conditions. I could do 60 mg to -0- within...
https://connect.mayoclinic.org/comment/1341138/
Eventually, I was able to taper off Prednisone ... After Actemra was started for PMR, I ... was able to taper off Prednisone again ... a month or two to put it back into remission ... I only do a monthly infusion of Actemra
Not much can be done about the adrenal suppression and a low cortisol level. It is...
https://connect.mayoclinic.org/comment/1356930/
With Actemra and other treatments which ... achieve remission quicker without adrenal ... achieve a "steroid free sustained remission ... currently do monthly infusions of Actemra ... I got off Prednisone almost 5 years
Generally speaking ... the likelihood of prednisone side effects are related to: 1) dose--the higher the...
https://connect.mayoclinic.org/comment/1334508/
GCA patients as defined by sustained remission ... within a year of starting Actemra. ... significantly less when treated with Actemra ... When Actemra works ... it works well ... There are potential side effects from Actemra
PMR was treated with prednisone for 12 years and I never did achieve a lasting remission....
https://connect.mayoclinic.org/comment/1174657/
and I never did achieve a lasting remission ... When Actemra was tried, I achieved remission ... when I don't receive a monthly Actemra ... I need long term treatment with Actemra ... I do a monthly infusion of Actemra instead
I have reactive arthritis which is a "cousin" to psoriatic arthritis without the psoriasis. I could...
https://connect.mayoclinic.org/comment/1242978/
flares of reactive arthritis with Prednisone ... I stayed in remission for a year or ... until Actemra was tried. ... purely my choice to go back on Actemra ... since my last flare of uveitis so Actemra
Hello @lsm47 I was thinking about your post today while in the pool at the JCC....
https://connect.mayoclinic.org/comment/1161452/
and wrists when I was at about 5 mg Prednisone ... You said are on Acterma for a year now ... - for are you officially in remission ... several months I have tapered to zero Prednisone
In retrospect, I should have tried harder to taper off Prednisone sooner. I tried to taper...
https://connect.mayoclinic.org/comment/1122952/
I also knew when I was in remission ... It was hard to know when PMR was in remission ... #1 Actemra allowed me to lower my ... #2 Actemra doesn't suppress ... Actemra worked well for the PMR part
@jabrown0407 suggestions have merit. I took Prednisone for more than 12 years. My primary diagnosis was...
https://connect.mayoclinic.org/comment/1122681/
When Actemra (tocilizumab) addressed ... PMR stays in remission as long as I ... do a monthly infusion of Actemra. ... Some people have "sustained remissions ... " and are able to discontinue Actemra
"None of these drugs work on helping to restart your cortisol." I mostly agree with this....
https://connect.mayoclinic.org/comment/1116415/
Another year elapsed before Actemra ... distant history and thought to be in remission ... Without going into details, Actemra ... Since Actemra allowed me to maintain ... I chose Actemra instead of Humira.
- First
- 1
- 2
- 3
- 4
- ...
- Next
- Last