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2,069 total results
Comments (2,004)
@moldy I read your other comments on actemera and you seem to be doing quite well...
https://connect.mayoclinic.org/comment/857829/
moldy I read your other comments on actemera
Thank you. My first Acterma injection tonight. Fingers crossed. Bloodwork in 2 weeks, taking the 60milligrams...
https://connect.mayoclinic.org/comment/812120/
My first Acterma injection tonight.
I have had PMR for five years. I have been on prednisone since then. I was...
https://connect.mayoclinic.org/comment/1256731/
1 mg with the help of infusions of Actemera
Frenchfrank51 Several months after my pmr diagnosis, my CRP and ESR suddenly elevated. Haemoglobin plummeted, despite...
https://connect.mayoclinic.org/comment/1255919/
Actemera.
I was on prednisone for 13 years with Actemera as a *minimizing agent....now I am off...
https://connect.mayoclinic.org/comment/1315330/
was on prednisone for 13 years with Actemera
To salmountain, Before GCA my husband and I were dx with a-fib. We have recovered from...
https://connect.mayoclinic.org/comment/1240774/
Actremra every month since August 2024
Ah I see @tsc (pardon the pun) I’ve not had any cranial symptoms. Mine is pmr/...
https://connect.mayoclinic.org/comment/1263630/
neutrophils and liver enzymes because of Actemera
Ha ha same same . Haemoglobin dropped suddenly enough to think maybe I was bleeding. Thanks...
https://connect.mayoclinic.org/comment/1259941/
pred , along side immediate start Actemera ... term side effects of pred and / or Actemera
Someone else mentioned Actemara, but it’s not FDA approved, so I doubt my Rheumatologist will let...
https://connect.mayoclinic.org/comment/1236291/
Someone else mentioned Actemara, but
Hello jeanrod825 My diagnosis of GCA was October 2024 too ! Albeit mine is large vessel...
https://connect.mayoclinic.org/comment/1300749/
with concurrent 162mg subcutaneous Actemera ... Side effects of Actemera nil except ... I’d say I’m fortunate Actemera has made ... Actemera has been a wonder drug for ... why your doctor wouldn’t consider Actemera
I have rheumatoid arthritis, fibromyalgia and Polymyalgia Rheumatica. I have not taken prednisone. I took it...
https://connect.mayoclinic.org/comment/1201780/
I hamve taken Acterma and another infusion
My experience with GCA is similar in that I too have large vessel vasculitis GCA ,...
https://connect.mayoclinic.org/comment/1194814/
Started 50mg pred and 162mg Actemera ... confident I’ll be off pred and continue actemera ... says any relapse will be treated with Actemera
Good to hear your eyesight intact Jeff. Loss of vision is the most feared effect of...
https://connect.mayoclinic.org/comment/1240248/
me to bring a cool bag to collect Actemera ... Best i keep Actemera cold for this trip
Yes DadCue! 12 years is a very long time!! Hope your bones are ok! Haven’t heard...
https://connect.mayoclinic.org/comment/1256877/
Haven’t heard of Acterma
Good luck
I would use whomever your comfortable with getting a diagnosis. Just me. But you need to...
https://connect.mayoclinic.org/comment/1079002/
There are newer drugs like Kevzara and Acterma
Hi @bitsygirl, I don’t think I would start using steroids if you can manage without them....
https://connect.mayoclinic.org/comment/1013125/
I am hoping to try Actemera as soon
I have an autoimmune disease and Mayo doctors used a drug called Actemre to effectively replace...
https://connect.mayoclinic.org/comment/950577/
and Mayo doctors used a drug called Actemre ... You might want to ask your doctor if Actemre
I have PMR /GCA started out at 40 mg prednisone and now at 20 mg. Was...
https://connect.mayoclinic.org/comment/881808/
everyone here is doing prednisone and acterma ... rheumatologist said we can consider acterma
After 6 weeks of begging for answers and 6 misdiagnoses, I was diagnosed with temporal Arteritis...
https://connect.mayoclinic.org/comment/803148/
Was anyone put on methotrexate or actemya
Thank you for sharing your story. Very inspirational. I hope that all is going well for...
https://connect.mayoclinic.org/comment/1248335/
that all is going well for you on Actemara
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