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Comments (2,005)

One of the worst aspects of PMR, for me, is that the treatment (prednisone) works but...

https://connect.mayoclinic.org/comment/836898/

newer "targeted" drugs like Actemra

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 3, 2023

I don't know when my onset of gout was. I passed a uric acid kidney stone...

https://connect.mayoclinic.org/comment/1210594/

--------------------- Maybe the Actemra

Discussion: Comprehensive Overview Of PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 11:41am

@nothatkaren The common thread of almost everyone on this platform is stress really feeds this disease....

https://connect.mayoclinic.org/comment/1214805/

I am on weekly injections of Actemra

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 17 8:49am

I had those conversations with my rheumatologist too. For the most part she always believed me...

https://connect.mayoclinic.org/comment/1163164/

When I started on Actemra (tocilizumab

Discussion: Sed Rate still elevated, but pain much improved

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2024

@marilynredder2367, and all...Thank you for sharing. I've been on various levels of Prednisone since I was...

https://connect.mayoclinic.org/comment/1004397/

have good answers and perhaps the Actemra

Discussion: Temporal Arteritis, PMR, RA

Support Group: Autoimmune Diseases

Posted: Jan 26, 2024

@seniormed Your story has some parallels to my story. I was diagnosed at the age of...

https://connect.mayoclinic.org/comment/1020947/

.. my rheumatologist started me on Actemra ... though my primary care doctor says Actemra ... #39;t seem to work for me as well as Actemra

Discussion: Anyone had a similar experience?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 23, 2024

Well ladies, add me to the group of ANA anomalies. I’m 61, I’ve been on prednisone...

https://connect.mayoclinic.org/comment/1336067/

She favored Orencia or Actemra.

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Jun 27 5:48am

Dear mehow: I started out with head pain while lying down to sleep. One a.m. I...

https://connect.mayoclinic.org/comment/1242323/

off Pred at end of August on put on Actemra

Discussion: Possible GCA

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 21 12:56pm

I'm sorry you're experiencing GCA. I was diagnosed with GCA and PMR almost a year ago....

https://connect.mayoclinic.org/comment/1283706/

You could request a prescription for Actemra

Discussion: Can you split Prednisone dose for GCA?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17 3:01am

I'm glad you didn't lose your vision to GCA. I had a similar threat of vision...

https://connect.mayoclinic.org/comment/1248071/

Actemra seems to prevent my uveitis

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 1 12:19pm

You have asked an interesting question. Nobody really knows how long PMR lasts except that prolonged...

https://connect.mayoclinic.org/comment/1283501/

When my chronic PMR was treated with Actemra

Discussion: PMR relapse- anyone mild and quick recovery?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 16 4:39pm

"I am an early riser, so I take the prednisone really early, around 4 am. So...

https://connect.mayoclinic.org/comment/1200881/

Actemra might also be playing a role

Discussion: Timing of taking prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2024

It is difficult to be hopeful when a person is still on prednisone. The following was...

https://connect.mayoclinic.org/comment/1168212/

my rheumatologist wanted me to try Actemra

Discussion: The affect of beta blockers on adrenaline and cortisol levels.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 4, 2024

What doses of Prednisone did you take for asthma? My first dose of Prednisone was at...

https://connect.mayoclinic.org/comment/1118988/

for PMR was 12 years for me until Actemra

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6, 2024

@valerie6062 Yes, we certainly do, Valerie. It completely changed my life too. So, you have the...

https://connect.mayoclinic.org/comment/881421/

I'm also on an Actemra pen injection

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19, 2023

I'm thrilled to hear you will see a private rheumatologist; I didn't realize you lived in...

https://connect.mayoclinic.org/comment/867752/

later, I had to decide whether to take Actemra

Discussion: i have come off steroids after 11 years, am finding it very difficult

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27, 2023

I think methotrexate (MTX) is a good medication to try. It is probably the most widely...

https://connect.mayoclinic.org/comment/1128816/

MTX was a prerequisite for getting Actemra

Discussion: Methotrexate vs Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 22, 2024

In reply to @jabrown0407 "When I received my first PMR diagnosis I refused steroids long term...

https://connect.mayoclinic.org/comment/1050579/

happy with what I've seen re: Actemra

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 14, 2024

@dadcue, @johnbishop, @ropnrose...and alll... dadcue, your journey is very similar to mine in the way these...

https://connect.mayoclinic.org/comment/1203913/

I'm researching Kevzara and Actemra

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 4:16pm

The problem with testing for adrenal insufficiency is because cortisol levels can't be tested reliably until...

https://connect.mayoclinic.org/comment/1049136/

maintain my 3 mg dose of prednisone after Actemra

Discussion: Adrenal Insufficiency and Tapering Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 11, 2024