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Comments (2,481)

Hi Diane - I am 61 and 9 months post allogeneic stem cell transplant for eosinophilic...

https://connect.mayoclinic.org/comment/1368373/

For myself I have also had Lupus (SLE ... considered that if I had a serious Lupus ... 37% when I started jakifi) and my lupus

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 11 12:42pm

You are not crazy, and props to you for advocating for yourself and asking for a...

https://connect.mayoclinic.org/comment/1022728/

I don’t have lupus, but I have an autoimmune

Discussion: Lupus or not Lupus?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2024

Hi, I have been having issues with dizziness/vertigo, headaches, vision issues, neck pain, balance issues, and...

https://connect.mayoclinic.org/comment/1152002/

my mother had systemic and discoid lupus

Discussion: Empty Sella Syndrome

Support Group: Brain & Nervous System

Posted: Oct 4, 2024

My problem is that I cannot do any of the contrast dyes, and MRI threatens to...

https://connect.mayoclinic.org/comment/1127407/

Also lupus joint pain and high antibodies

Discussion: Bone pain: Can anyone explain what cancer in the bones feels like?

Support Group: Cancer

Posted: Aug 20, 2024

Hi All, again, thank you for all of the responses, a lot were informative. So autoimmune...

https://connect.mayoclinic.org/comment/1083793/

Lupus, RA, arthritis, HS, psoriasis

Discussion: Aggravation with results

Support Group: Autoimmune Diseases

Posted: Jun 9, 2024

I'm relatively new to this. I've had symptoms since last fall, finally got an appointment w/...

https://connect.mayoclinic.org/comment/1075992/

anyone w/ PMR, tho' my mother had lupus

Discussion: PMR flare -Shoulder and neck pain..and headaches

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 27, 2024

There are several blood tests that can be helpful in addition to the EMG test. All...

https://connect.mayoclinic.org/comment/1046520/

peripheral neuropathy themselves, like lupus

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 6, 2024

I wonder why we do that, put honouring the other person over honouring ourselves? An uncomfortable...

https://connect.mayoclinic.org/comment/927412/

cytotoxics for your cancer help with lupus

Discussion: Relationships: How do you form and maintain them when ill?

Support Group: Just Want to Talk

Posted: Sep 10, 2023

I went to ER for broken ribs (7) and they found lots of other issues that...

https://connect.mayoclinic.org/comment/615812/

panel for autoimmune disease, like Lupus

Discussion: Misdiagnosed multiple times I need answers

Support Group: Autoimmune Diseases

Posted: Jul 11, 2021

I haven’t started the meds yet. I’ve been on Dilantin all my life with few exceptions...

https://connect.mayoclinic.org/comment/317152/

sjogrens, and tested positive for lupus

Discussion: What is your experience with Lamotrigine? Side effects?

Support Group: Epilepsy & Seizures

Posted: Jul 25, 2020

Hi- I've had lupus, fibromyalgia and reynauds for 48 years. I've had many critical times and...

https://connect.mayoclinic.org/comment/1247983/

Hi- I've had lupus, fibromyalgia

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Mar 1 10:47am

I'm sorry, I just figured out how to post to your reply. I don't recall the...

https://connect.mayoclinic.org/comment/137713/

years ago when he was diagnosed with Lupus

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 29, 2018

I was diagnosed with Autoimmune hepatitis with fibrosis 3-4 in 2023, my liver enzymes had been...

https://connect.mayoclinic.org/comment/1204782/

Fibromyalgia and in remission for Lupus

Discussion: Autoimmune Hepatitis and remission?

Support Group: Autoimmune Diseases

Posted: Jan 5 6:02pm

@slkanowitz - Hello. Thank you for this information. All the tests you mentioned above except the...

https://connect.mayoclinic.org/comment/1190071/

symptoms after ruling out sjogrens, lupus

Discussion: ANA Titer 1:1280 pattern homogeneous and speckled o/w negative work-up

Support Group: Autoimmune Diseases

Posted: Dec 14, 2024

There is a lot of information and experiences available in this group. Become knowledgeable. Generally, unless...

https://connect.mayoclinic.org/comment/1122638/

out other possible problems, like lupus

Discussion: Flareups, Prednisone, Tapering

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13, 2024

@windyshores I also have Systemic Lupus, diagnosed in 1988. They consider it a fairly mild case,...

https://connect.mayoclinic.org/comment/1088681/

@windyshores I also have Systemic Lupus

Discussion: Getting sick after sun exposure

Support Group: Autoimmune Diseases

Posted: Jun 17, 2024

When you do research there are several versions of screening tests for psoriatic arthritis. You answer...

https://connect.mayoclinic.org/comment/1049077/

They will likely reassess your lupus

Discussion: Can anyone assist me with any help in regards to my skin condition

Support Group: Autoimmune Diseases

Posted: Apr 11, 2024

The left side of my face is numb. I had an MRI to check for acoustic...

https://connect.mayoclinic.org/comment/868434/

very high auto-antibodies (ANA), with lupus

Discussion: Small Fiber Neuropathy and Face?

Support Group: Neuropathy

Posted: May 29, 2023

God Bless You! Covid can be brutal whether you have a mild or severe case. I...

https://connect.mayoclinic.org/comment/860560/

Also, I am recently being treated for Lupus

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: May 16, 2023

Hello. Painsomnia here. I've been denied several times, whether to Clinical Genomics, or to General Internal...

https://connect.mayoclinic.org/comment/217848/

type of EDS), Scoliosis, systemic Lupus

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Sep 9, 2020