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Comments (2,008)

Lots of discussion on this thread to MTX. Generally the idea is to shut down your...

https://connect.mayoclinic.org/comment/1084560/

Kevzara and Actemra.

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 10, 2024

I'm sorry that you were diagnosed with PMR. I can't add anything to what others have...

https://connect.mayoclinic.org/comment/1215421/

rheumatologist that I wanted her to order Actemra

Discussion: Feeling defeated

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 18 8:04am

One additional thing ... the endocrinolgist monitored my cortisol level while I was on 3 mg...

https://connect.mayoclinic.org/comment/1277794/

I just verified that Actemra seemed

Discussion: Better to be in some pain or better to up the dose of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 9 10:44am

Yes. I was always going 110 mph. And then last spring I couldn't do an hour...

https://connect.mayoclinic.org/comment/1292292/

7 mg. of Prednisone and have had 4 Actemra

Discussion: Is fatigue a symptom of PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 28 9:23pm

I'm sorry you lost part of your vision. I had several instances of temporary vision loss...

https://connect.mayoclinic.org/comment/1299294/

started taking weekly injections of Actemra

Discussion: Tapering off prednisone with GCA temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 7 5:20pm

This link shows all six of the recommendations for a treat-to-target (T2T) approach to treat PMR...

https://connect.mayoclinic.org/comment/879884/

I can say Actemra worked infinitely

Discussion: Have you been able to taper prednisone with long lasting success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 16, 2023

I'm 71 and have GCA and PMR. I started on 60 mg prednisone last July and...

https://connect.mayoclinic.org/comment/1232919/

prednisone last July and added weekly Actemra

Discussion: Working out with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 9 10:55am

I agree with @jabrown0407 that your dose sounds like it is too low if you are...

https://connect.mayoclinic.org/comment/1239856/

prednisone for the past 8 months, and Actemra

Discussion: Emotional Roller Coaster and PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 18 11:21am

it's unfortunate that some of these people are so egotistical that they won't listen to reason....

https://connect.mayoclinic.org/comment/1013485/

Arteritis, put me on Prednisone and then Actemra

Discussion: How do I get my Rheumatologist to listen ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11, 2024

I was on Losartin (Cozaar) and Hydrochlorothiazide (Hydrodiurel) also. My calcium channel blocker was Amlodipine (Norvasc)....

https://connect.mayoclinic.org/comment/1168526/

10 mg in 12 years until I started Actemra ... almost all my medications except for Actemra

Discussion: The affect of beta blockers on adrenaline and cortisol levels.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 5, 2024

Elevated liver enzymes are a possible side effect of Kevzara. The reason for this is unknown....

https://connect.mayoclinic.org/comment/1220095/

my liver enzymes were elevated on Actemra ... enzymes did not result in stopping Actemra

Discussion: Kevzara and elevated liver enzymes ALT AST

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 9:05pm

First, I wish to say that it takes fortitude to come off prednisone like that. On...

https://connect.mayoclinic.org/comment/860893/

my ophthalmologist didn't think Actemra ... happy with my choice to go back on Actemra

Discussion: i have come off steroids after 11 years, am finding it very difficult

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 16, 2023

@windyshores Thanks for the info. I remember you saying one was good for adjusting the dose...

https://connect.mayoclinic.org/comment/1092371/

2024 and has tapered to 20 mg using Actemra

Discussion: Hello, I joined today to get help in deciding what medication to begin

Support Group: Osteoporosis & Bone Health

Posted: Jun 23, 2024

My husband is the one with PMR and GCA. Diagnosed with PMR May 2023, GCA Feb...

https://connect.mayoclinic.org/comment/1076671/

He's also on Actemra injections

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2024

Sounds a lot like my situation. I've had LCA for 21 months[that's since diagnosis]. I suggested...

https://connect.mayoclinic.org/comment/1060502/

the moment I am on 7mg and having an Actemra

Discussion: GCA Relapse - A Slow Burn

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 1, 2024

It might be time to read about Metabolic Syndrome. Prednisone increases the risk of new-onset or...

https://connect.mayoclinic.org/comment/1073517/

Actemra can also cause higher than normal ... medications" because of my monthly Actemra

Discussion: Statins - side-effects, PMR, Giant Cell Arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 23, 2024

Hi Jeff, It’s been a while since I’ve been here. PMR diagnosis in about 2016. Still...

https://connect.mayoclinic.org/comment/1340040/

caused chest pain and chest rash, Actemra

Discussion: PCP advising fast taper

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 2 9:22pm

Does anyone’s blood pressure go low while tapering down ?i have pmr been on prednisone for...

https://connect.mayoclinic.org/comment/1344144/

I didn't have the problem when Actemra

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 9 6:30am

I don’t consider myself an opioid addict— yes I do depend on them when needed for...

https://connect.mayoclinic.org/comment/1119809/

My hope is that the Actemra will get

Discussion: Prednisone Side Effects and Withdrawal Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 8, 2024

@nativeoregirl I have a great deal of compassion for what you are experiencing. My feeling is...

https://connect.mayoclinic.org/comment/870566/

I've been on Pred and Actemra for

Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1, 2023