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194 total results
Comments (183)
My 72 yr. old husband was falling, had balance problems and very high inflammation markers. His...
He was getting IVIG infusions 3 times ... The doctor told him to stop drinking ... and stop the infusions.
Support Group: Autoimmune Diseases
Posted: Sep 3, 2023
I have started subcutaneous IVIG, Hizentra, about 3 months ago. I had been diagnosed as having...
I have started subcutaneous IVIG, Hizentra ... I have had non-stop diarrhea because ... said this treatment could possibly stop
Support Group: Neuropathy
Posted: Jul 19, 2019
Hi @arunhari . I began with facial brachial dystonic seizures/epilepsy and had facial and arm jerks...
hospital and they got the seizures to stop ... with IVIG therapy and Keppra at 500 ... jerking came back so I had another 5 day IVIG
Support Group: Epilepsy & Seizures
Posted: Sep 22, 2018
Hello @gretagean I have ocular & regular MG. I've been on both Mestinon & IVIG Gamunex...
I've been on both Mestinon & IVIG Gamunex ... number of years. 2 & 1/2 months ago I stopped ... the IVIG for other medical reasons ... controlled better when I was doing both the IVIG
Support Group: Autoimmune Diseases
Posted: Oct 29, 2016
I was on IVIG from age 10-18 autoimmune disorder. I am taking panzgya. It helps with...
I was on IVIG from age 10-18 autoimmune ... On the panzyga it stops the foot and ... Avoid IVIG with sugar in it sucrose ... cause severe kidney problems use the IVIG
Support Group: Neuropathy
Posted: Jan 15, 2025
I have had MG for about 6 years now. Had a lot of leg cramps early...
Could stop them by standing up as soon ... many treatments including Rituximab, IVIG
Support Group: Autoimmune Diseases
Posted: Apr 13, 2025
@amm97 My stomach pain down the middle of my abdominal wall is always there. From xiphoid...
day in the spring of 2018 it slowly stopped ... The plan is to do subcutaneous IVIG ... learned to live with migraines but non stop
Support Group: Women's Health
Posted: Jun 30, 2022