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199 total results
Comments (187)
IVIG takes at least six months to start working. It helps the neuropathy from progressing. Most...
https://connect.mayoclinic.org/comment/1092870/
IVIG takes at least six months to start ... Most people get inpatient and stop it
Discussion: Retuximab infusions
Support Group: Neuropathy
Posted: Jun 23, 2024
What you are experiencing sounds very similar to my experience. But in addition to the testing...
https://connect.mayoclinic.org/comment/1087899/
immediately blasted me with daily IVIG ... and prednisone which stopped the advance ... I have been on IVIG ever since and
Discussion: Spreading Sensory Peripheral Neuropathy - What next?
Support Group: Neuropathy
Posted: Jun 16, 2024
My son has had gammaguard - no problems with clotting . He had both selective iga...
https://connect.mayoclinic.org/comment/1064307/
rarely gets sick but in addition to ivig ... We stopped supplements for 3-4 months ... So supplements plus the ivig seems to ... Ivig has been helpful for everything ... possible trace amounts of iga in the ivig
Discussion: Treatment for (low) IgA deficiency
Support Group: Blood Cancers & Disorders
Posted: May 8, 2024
My 72 yr. old husband was falling, had balance problems and very high inflammation markers. His...
https://connect.mayoclinic.org/comment/923490/
He was getting IVIG infusions 3 times ... The doctor told him to stop drinking ... and stop the infusions.
Discussion: Anyone been diagnosed with CIDP? It's very rare
Support Group: Autoimmune Diseases
Posted: Sep 3, 2023
I have started subcutaneous IVIG, Hizentra, about 3 months ago. I had been diagnosed as having...
https://connect.mayoclinic.org/comment/219561/
I have started subcutaneous IVIG, Hizentra ... I have had non-stop diarrhea because ... said this treatment could possibly stop
Discussion: Has anyone had IVIG Infusions for Neuropathy?
Support Group: Neuropathy
Posted: Jul 19, 2019
Hi @arunhari . I began with facial brachial dystonic seizures/epilepsy and had facial and arm jerks...
https://connect.mayoclinic.org/comment/128822/
hospital and they got the seizures to stop ... with IVIG therapy and Keppra at 500 ... jerking came back so I had another 5 day IVIG
Discussion: Living with epilepsy - Introduce yourself & meet others
Support Group: Epilepsy & Seizures
Posted: Sep 22, 2018
Hello @gretagean I have ocular & regular MG. I've been on both Mestinon & IVIG Gamunex...
https://connect.mayoclinic.org/comment/102405/
I've been on both Mestinon & IVIG Gamunex ... number of years. 2 & 1/2 months ago I stopped ... the IVIG for other medical reasons ... controlled better when I was doing both the IVIG
Discussion: Myasthenia Gravis: Share your treatment journey
Support Group: Autoimmune Diseases
Posted: Oct 29, 2016
I was on IVIG from age 10-18 autoimmune disorder. I am taking panzgya. It helps with...
https://connect.mayoclinic.org/comment/1213956/
I was on IVIG from age 10-18 autoimmune ... On the panzyga it stops the foot and ... Avoid IVIG with sugar in it sucrose ... cause severe kidney problems use the IVIG
Discussion: New Kid on the block with several questions
Support Group: Neuropathy
Posted: Jan 15, 2025